On completion of this chapter, the reader will be able to: • Identify instances in which informed consent is required and in which minors may be considered emancipated. • Formulate general guidelines for preparing children for procedures, including surgery. • Implement play in therapeutic procedures. • List general strategies for enhancing compliance in children and families. • Outline general hygiene and care procedures for hospitalized children. • Implement feeding techniques that encourage food and fluid intake. • Describe methods of reducing the temperature in a child with fever or hyperthermia. • Describe systems that can be used for infection control. • Describe safe methods of administering oral, parenteral, rectal, optic, otic, and nasal medications to children. • Identify nursing responsibilities in maintaining fluid balance. • Demonstrate correct procedures for postural drainage and tracheostomy care. • Describe the procedures involved in providing nutrition via gavage, gastrostomy, and parenteral routes. • Describe the procedures involved in administering an enema and ostomy care to children. 1. The person must be capable of giving consent; he or she must be over the age of majority (usually age 18 years) and considered competent (i.e., possessing the mental capacity to make choices and understand their consequences). 2. The person must receive the information needed to make an intelligent decision. 3. The person must act voluntarily when exercising freedom of choice without force, fraud, deceit, duress, or other forms of constraint or coercion. The patient has the right to accept or refuse any health care. If a patient is treated without consent, the hospital or health care provider may be charged with assault and held liable for damages. • Minor surgery (e.g., cutdown, biopsy, dental extraction, suturing a laceration [especially one that may have a cosmetic effect], removal of a cyst, closed reduction of a fracture) • Diagnostic tests with an element of risk (e.g., bronchoscopy, angiography, lumbar puncture [LP], cardiac catheterization, bone marrow aspiration) • Medical treatments with an element of risk (e.g., blood transfusion, thoracentesis or paracentesis, radiotherapy) Other situations that require patient or parental consent include the following: • Photographs for medical, educational, or public use • Removal of the child from the health care institution against medical advice • Postmortem examination, except in unexplained deaths such as sudden infant death, violent death, or suspected suicide Decision making involving the care of older children and adolescents should include the patient’s assent (if feasible) and the parent’s consent. Assent means that the child or adolescent has been informed about the proposed treatment, procedure, or research and is willing to allow a health care provider to perform it. Assent should include the following: • Helping the patient achieve a developmentally appropriate awareness of the nature of his or her condition • Telling the patient what he or she can expect • Making a clinical assessment of the patient’s understanding • Soliciting an expression of the patient’s willingness to accept the proposed procedure Health care providers should use multiple methods to provide information, including age-appropriate methods (e.g., videos, peer discussion, diagrams, and written materials). The nurse should provide an assent form for the child to sign, and the child should keep a copy. By including the child in the decision-making process and gaining his or her acceptance, staff members demonstrate respect for the child. Assent is not a legal requirement but an ethical one to protect the rights of children. Parents have full responsibility for the care and rearing of their minor children, including legal control over them. As long as children are minors, their parents or legal guardians are required to give informed consent before medical treatment is rendered or any procedure is performed. If the parents are married to one another, consent from only one parent is required for nonurgent pediatric care. If the parents are divorced, consent usually rests with the parent who has legal custody (Berger and AAP Committee on Medical Liability, 2003). Parents also have a right to withdraw consent later. Exceptions to requiring parental consent before treating minor children occur in situations in which children need urgent medical or surgical treatment and a parent is not readily available or refuses to give consent. For example, a child may be brought to an emergency department accompanied by a grandparent, child care provider, teacher, or others. In the absence of parents or legal guardians, people in charge of the child may be given permission by the parents to give informed consent by proxy. In emergencies, including danger to life or the possibility of permanent injury, appropriate care should not be withheld or delayed because of problems obtaining consent (AAP, 2003; Berger and AAP Committee on Medical Liability, 2003). The nurse should document any efforts made to obtain consent. The Health Insurance Portability and Accountability Act of 1996 (HIPAA) was passed to help protect and safeguard the security and confidentiality of health information. Because adolescents are not yet adults, parents have the right to make most decisions on their behalf and receive information. However, adolescents are more likely to seek care in a setting in which they believe their privacy will be maintained. All 50 states have enacted legislation that entitles them to consent to treatment for one or more “medically emancipated” conditions such as sexually transmitted infections, mental health services, alcohol and drug dependency, pregnancy, and contraceptive advice without the parents’ knowledge (AAP, 2003; Anderson, Schaechter, and Brosco, 2005; Tillett, 2005). Consent to abortion is controversial, and statues vary widely by state. State law preempts HIPAA, regardless of whether that law prohibits, mandates, or allows discretion about a disclosure. The Guidelines boxes describe general guidelines for preparing children for procedures along with age-specific guidelines that consider their developmental needs and cognitive abilities. In addition to these suggestions, nurses should consider the child’s temperament, existing coping strategies, and previous experiences in individualizing the preparatory process. Children who are distractible and highly active or those who are “slow to warm up” may need individualized sessions (i.e., shorter for active children and more slowly paced for shy children). Youngsters who tend to cope well may need more emphasis on using their present skills, whereas those who appear to cope less adequately can benefit from more time devoted to simple coping strategies such as relaxing, breathing, counting, squeezing a hand, or singing. Children with previous health-related experiences still need preparation for repeat or new procedures; however, the nurse must assess what they know, correct their misconceptions, supply new information, and introduce new coping skills as indicated by their previous reactions. Especially for painful procedures, the most effective preparation includes providing sensory-procedural information and helping the child develop coping skills such as imagery or relaxation (see Guidelines boxes). Children need support during procedures, and for young children the greatest source of support is the parents. They represent security, protection, safety, and comfort. Several studies have reported a positive impact on parental distress and satisfaction and no difference in technical complications when parents remain with children (Piira, Sugiura, Champion, et al., 2005). Controversy exists regarding the role parents should assume during the procedure, especially if discomfort is involved. Several professional associations support the option of family presence during invasive procedures (American Association of Critical Care Nurses, 2006; Emergency Nurses Association, 2005). The nurse should assess the parents’ preferences for assisting, observing, or waiting outside the room and the child’s preference for parental presence. Respect the child’s and parents’ choices. Give parents who wish to stay appropriate explanation about the procedure and coach them about where to sit or stand and what to say or do to help the child through it. Support parents who do not want to be present in their decision and encourage them to remain close by so they can be available to support the child immediately after the procedure. Parents should also know that someone will be with their child to provide support. Ideally this person should inform the parents after the procedure about how the child did. Age-appropriate explanations are one of the most widely used interventions for reducing anxiety in children undergoing procedures. Before performing a procedure, explain what is to be done and what is expected of the child. The explanation should be short, simple, and appropriate to the child’s level of comprehension. Long explanations may increase anxiety in a young child. When explaining the procedure to parents with the child present, the nurse uses language appropriate to the child because unfamiliar words can be misunderstood (Table 39-1). If the parents need additional preparation, it is done in an area away from the child. Teaching sessions are planned at times most conducive to the child’s learning (e.g., after a rest period) and for the usual span of attention. TABLE 39-1 SELECTING NONTHREATENING WORDS OR PHRASES Special equipment is not necessary for preparing a child; but for young children who cannot yet think conceptually, using objects to supplement verbal explanation is important. Allowing children to handle actual items that will be used in their care such as a stethoscope, sphygmomanometer, or oxygen mask helps them develop familiarity with these items and reduces the fear often associated with their use. Miniature versions of hospital items such as gurneys and x-ray and intravenous (IV) equipment can be used to explain what the children can expect and permit them to safely experience situations that are unfamiliar and potentially frightening. Use photographs of children in different areas of the hospital (e.g., radiology department, operating room) to give children a more realistic idea of equipment they may encounter. Written and illustrated materials are also valuable aids to preparation.* Distraction is a powerful coping strategy during painful procedures (Uman, Chambers, McGrath, et al., 2006). It is accomplished by focusing the child’s attention on something other than the procedure. Singing favorite songs, listening to music with a headset, counting aloud, or blowing bubbles to “blow the hurt away” are effective techniques. (For other nonpharmacologic interventions, see Chapter 30.) Planned activity after the procedure is helpful in encouraging constructive expression of feelings. For verbal children reviewing the details of the procedure can clarify misconceptions and garner feedback for improving the nurse’s preparatory strategies. Play is an excellent activity for all children. Infants and young children should have the opportunity for gross motor movement. Older children are able to vent their anger and frustration in acceptable pounding or throwing activities. Play-Doh is a remarkably versatile medium for pounding and shaping. Dramatic play provides an outlet for anger and places the child in a position of control in contrast to the position of helplessness in the real situation. Puppets also allow the child to communicate feelings in a nonthreatening way. One of the most effective interventions is therapeutic play, which includes well-supervised activities such as permitting the child to give an injection to a doll or stuffed toy to reduce the stress of injections (Fig. 39-1). The use of play is an integral part of relationships with children. As such its value in specific situations is discussed throughout this book such as in Chapter 26 in relation to hospitalization. Many institutions have elaborate and well-organized play areas and programs under the direction of child life specialists. Other institutions have limited facilities. No matter what the institution provides for children, nurses can include play activities as part of nursing care. Play can be used to teach, express feelings, or achieve a therapeutic goal. Consequently it should be included in preparing children for and encouraging their cooperation during procedures. Play sessions after procedures can be structured such as directed toward needle play or general, with a wide variety of equipment available with which children can play. Routine procedures such as measuring blood pressure and oral administration of medication may be of concern to children. Box 39-1 describes suggestions for incorporating play into nursing procedures and activities for the hospitalized child that facilitate learning and adjustment to a new situation.
Pediatric Variations of Nursing Interventions
General Concepts Related to Pediatric Procedures
Informed Consent
Requirements for Obtaining Informed Consent
Eligibility for Giving Informed Consent
Informed Consent of Parents or Legal Guardians.
Treatment Without Parental Consent.
Adolescents, Consent, and Confidentiality.
Preparation for Diagnostic and Therapeutic Procedures
Psychologic Preparation
Parental Presence and Support.
Provide an Explanation.
WORDS AND PHRASES TO AVOID
SUGGESTED SUBSTITUTIONS
Shot, bee sting, stick
Medicine under the skin
Organ
Special place in body
Test
To see how (specify body part) is working
Incision, cut
Special opening
Edema
Puffiness
Stretcher, gurney
Rolling bed, bed on wheels
Stool
Child’s usual term
Dye
Special medicine
Pain
Hurt, discomfort, “owie,” “boo-boo,” sore, achy, scratchy
Deaden
Numb, make sleepy
Fix
Make better
Take (as in “take your temperature”)
See how warm you are
Take (as in “take your blood pressure”)
Check your pressure; hug your arm
Put to sleep, anesthesia
Special sleep so you won’t feel anything
Catheter
Tube
Monitor
Television screen
Electrodes
Stickers, ticklers
Specimen
Sample
Performance of the Procedure
Provide Distraction.
Postprocedural Support
Encourage Expression of Feelings.
Use of Play in Procedures