Multiproblem Families
Claudia M. Smith*
Focus Questions
What feelings are experienced by nurses who work with multiproblem families?
How do nurse and family values interact in these nurse–client relationships?
How does the nurse work toward mutual goal setting with multiproblem families?
How does a nurse transcend labeling, blame, and cutoff when a multiproblem family is encountered?
What are appropriate and achievable goals for multiproblem families?
Key Terms
Appraisal
Coherence
Crisis
Family of promise
Family resilience
Hardiness
Multiproblem family
Resources
Stressor
Vulnerable families
Working with families is challenging, but the true challenge for a community/public health nurse is working with families that have problems in several areas simultaneously. These families can be called multiproblem families to indicate that they face several concurrent difficulties. The problems may be serious, for example, abuse, neglect, substance abuse, illegal activities, homelessness, chronic mental illness, and major deficits in ability to care for members (Berne et al., 1990; Black et al., 2001; Jaffee et al., 2007). Families that experience this level of stress or disorganization often have little capacity to organize health promotion behaviors as they try to deal with immediate and serious problems.
Many health care professionals base their appraisal of family behavior on the basis of what they are comfortable with, which defines what they consider normal. Biased definitions of appropriate family functioning or the importance of self-sufficiency can create barriers to working with multiproblem families. Terms such as vulnerable families and families at risk help us recognize that certain families have an increased probability of experiencing acute or chronic problems. The term family of promise would be better to describe these families to decrease our tendency to blame these families and to convey an attitude of hopefulness (Swadener & Lubeck, 1995). Any family, no matter how distressed, may be viewed as a family of promise because all families have the potential to stabilize and grow from difficult experiences. Most vulnerable families can be divided into two general types: (1) families that are experiencing crisis and (2) families with chronic problems.
Families experiencing crisis
The families of today’s world are exposed to multiple intense events such as natural disasters and acts of terrorism such as the events of September 11, 2001. More of our families face catastrophic fears, loss, and disruptive transitions (Walsh, 2006). Even the healthiest family, when it encounters multiple stressors and stress of long duration, can be pushed beyond its resources to crisis. Most families can be supported through the crisis and can regain some measure of their previous level of health. In crisis, some families even develop emergent behaviors to help them face the future. But families pushed to the limit are more vulnerable to future problems. What leads a family to crisis?
Family crisis is a continuous disruption, disorganization, or incapacitation of the family social system (Burr, 1973). Families in crisis may have serious disturbances in family organization and require basic changes in family patterns of functioning to restore stability. Crises come in many forms. The Resiliency Model of Family Stress, Adjustments, and Adaptation (McCubbin & McCubbin, 1993) reminds us that the stressor along with the family’s resources and appraisal of the stressful event interact to drive the family to a state of crisis or to adaptation (see Figure 12-5 in Chapter 12). The family’s response is influenced, in part, by the characteristics of the stressor, including the predictability, extent, onset, intensity, perceived solvability, and content of the stressor (Price & Price, 2010). Each dimension differs in its ability to affect the family. For example, an intense, unpredictable event such as a sudden death is more stressful than is the expected loss of an older family member.
The family’s perception of the event may be the most important mediating factor (Boss, 2002). When presented with a stressor, the family makes an appraisal of the situation. An appraisal is the perception of or assignment of meaning to a stressful event. The family schema or shared family view of the world shapes this appraisal. If family members judge themselves as inadequate to meet the demands, the tension increases.
Another factor is the family’s resources, including inherent family strengths and specific coping abilities. Resources can include personal assets such as innate intelligence or sense of humor, family system resources such as communication and problem-solving ability, and social support.
During the initial process of situational appraisal, including evaluation of the stressor, assessment of the family’s capabilities and strengths, and consideration of alternative courses of action and coping strategies, the family ultimately comes together as a unit to manage the stress. The process of coping begins. The successful family has several coping strategies that include internal and external mechanisms. Such a family knows how to use the coping mechanism that is most appropriate to the problem presented. The family manages stress, often adjusting behaviors as time goes on to adapt to new demands and changing environments (Boss, 2002). Adaptation is not an outcome but an ongoing process. This process occurs within the context of the community in which the family lives, which will greatly affect a family’s decisions and also suggests pathways for intervention (Patterson, 1988).
Sometimes, however, the coping measures themselves become stressors. For example, taking time off work to attend a health appointment may endanger a job. In many lower-income families, dependence on an older daughter for help with the household becomes burdensome, endangering the young female’s growth and development (Crouter et al., 2001).
Families that have experienced a pileup of demands—that is, long-term accumulation of and exposure to multiple stressors—will sometimes exhaust their ability to be resilient. These families are more vulnerable to stress when it is presented again. Such families may then find themselves in crisis.
In the family described in the following clinical example, pregnancy, illness, and unemployment pile up as demands that reduce the adaptability of the family. When a couple’s son is born prematurely with developmental delays, the family is overwhelmed
Helping families cope with crisis is within the scope of the community/public health nurse’s role. Interventions useful to this process are presented in Box 14-1.
Families with chronic problems
Ever since nurses began visiting in the community, they have encountered families that have had chronic problems and many barriers to achieving optimal health. Some of the families have experienced generations of poverty, as well as problems in many areas of functioning such as physical, psychological, and social. Many of these families have disturbances in their internal dynamics. The personal and family resources available to them, their range of coping behaviors, and their willingness and ability to use external sources of support combine to keep them in a perpetual state of stress.
Some families experience multiple situational stressors simultaneously (multiproblem families). Some families are vulnerable, some are presented with only negative choices, some struggle with poverty, and some have disturbances in internal dynamics. Many families with chronic problems have combinations of these situations at the same time. Experienced community/public health nurses recognize this situation and become aware of their own frustrations in dealing with families that seem unable or unwilling to change. The interface between multiproblem families and community/public health nurses is the focus of the remainder of this chapter.
Multiproblem Families
A multiproblem family has needs in several areas simultaneously: difficulty in achieving developmental tasks, illness or loss, inadequate resources and support, disturbances in internal dynamics, or environmental stressors (see Box 13-6). Multiproblem families are families in which combinations of low functional level, multiple stresses, multiple symptoms, and lack of support interact to threaten or destroy the family’s ability to meet the physical, social, and emotional needs of its members. A family does not need to have disturbances in family dynamics to have multiple problems. Circumstances beyond the family’s control and a pileup of demands can result in a family’s having multiple problems. However, disturbances in internal dynamics predispose a family to having multiple problems.
The multiproblem family in the following example has needs in at least four categories: developmental tasks, illness or loss, inadequate support, and internal dynamics
Developmental needs exist for the school-aged child, Keith, his cousins, and the adult family members. Illness needs are related to Keith’s muscular dystrophy, and family resources for Keith’s physical care are inadequate. Underlying all the other needs are disturbances in family dynamics manifested as child abuse, substance abuse, illegal behavior, and emotional cutoffs.
Vulnerable Families
Vulnerable families are families at increased risk because of the intensity and clustering of stressors associated with life events (Gillis, 1991; Janko, 1994). Examples of families at high risk for future health problems are families with members who are chronically ill or have Down syndrome or alcoholism. Women receiving Temporary Assistance for Needy Families often have health-related barriers that threaten their ability to leave welfare for work (Kneipp et al., 2011). These health-related conditions which are at higher rates than women in the general population include major depression, domestic violence, substance abuse, and poor general health. Special events such as assaults, teen pregnancy, and sexual abuse can also predispose a family to subsequent physical, emotional, and social problems. Many vulnerable families live in social situations in which loss of members through death, institutionalization, abandonment, or incarceration is common. The combination of intense stressors and depletion of resources can push the family beyond its capacity to cope.
Families with Negative Choices
Community/public health nurses assist families in coping with stress by helping them identify their previous coping style, their resources, and their alternatives for action. For some families, however, coping with stress remains a problem even after nursing intervention because the choices for action are all negative (Wilson, 1989). In some instances, none of the available choices will modify the problem, and sometimes the consequences of the choices are all negative and create more problems. For example, suppose a family is dealing with a husband and father who has Alzheimer disease. The wife, who has assumed the caregiver role, is exhausted and needs to spend some time out of the house. However, her husband becomes anxious and more confused whenever any other person takes over his care. None of the choices available to this family solves or completely alleviates the problem. The wife must choose among solutions with negative implications. Families that must cope when all the choices are undesirable are also a special-risk group.
Families in Poverty
The impact of poverty, or living in a resource-depleted, hazardous, or hostile environment, is also a factor that affects family coping. The poor, as individuals and as a group, are continually faced with multiple and chronic stressors, including frustration over employment options, inadequate and unsafe housing conditions, repeated exposure to violence and crime, inadequate child care assistance, and insensitive attitudes and responses of health and social service agencies (Berne et al., 1990). As family coping abilities are strained by unpredictable and unrelenting stressors, mastery of the situation decreases. Relationships are strained, feelings of helplessness and hopelessness increase, and self-esteem suffers (Cutrona et al., 2003). The spiral continues, as people become anxious and depressed, feel powerless, and thus are less able to marshal energy to meet the next day’s problems.
Poverty also brings its own set of health problems. Correlates of poverty include increased incidence of communicable diseases, especially tuberculosis and human immunodeficiency virus (HIV) infection; more episodes of illness; less use of preventive care; and higher rates of chronic disease, premature death, occupational hazards, and unsafe housing. Unfortunate correlates for children include delayed development, childhood depression and anxiety, and increased separation from families into foster care. Poor neighborhoods may also have greater environmental risks such as those from industrial sites, landfills, and toxic waste sites. Living within a poor area may contribute to excess mortality, independent of an individual’s own health behaviors (Waitzman & Smith, 1998). Poor individuals are also more likely to be homeless and to lack access to health care (Berne et al., 1990). The recent large increase in the number of working poor and unemployed in the United States is notable. In 2010, the poverty rate in the United States was the highest since 1993 (U.S. Census Bureau, 2011). The number of families in poverty was 9.2 million (11.7%). The number of families in poverty and the poverty rate increased for both married-couple families (3.6 million, 6.2%) and female-headed households with no spouse present (4.7 million, 31.6%).
Differences in family structures in poor families are often mentioned as the cause or source of multiple family problems. In actuality, family structures can serve to strengthen resilience rather than undermine it. Many multiproblem poor families have strong ongoing family connectedness even though single parenthood or teenage birth is the norm. The three-generational nature of these families adds support and buffers some of the stress (Chatman, 1996; Cooley & Unger, 1991). At times, however, the burden on the grandmother who is caring for younger family members can be stressful for her and lead to poor outcomes for others in the family (Unger & Cooley, 1992). Poor families often have developmental phases or attitudes that are different from those of other families. For example, Sachs and colleagues (1997) found that many low-income single mothers with young children held unrealistic expectations for child behavior, viewed their own parenting responsibilities as overwhelming, and perceived their children as unappreciative of the family unit. Discipline was often punitive.
Fulmer (1989) describes the family life cycle of poor families enmeshed in chronic unemployment and discrimination, vulnerable to problems, and intruded on by various agencies that affect their lives. Constantly reminded of their lack of power in the current system, some families turn to illegal activities to meet their basic needs. Hines (1989) cautioned that many variations can be found in poor families and described a shorter life cycle with three predominant phases (outlined in Table 14-1). The four characteristics are: (1) the life cycle is more truncated (less time is available to allow unfolding of developmental stages), and life transitions are not clearly delineated; (2) households are frequently headed by women and include extended family members; (3) the life cycle is punctuated by numerous unpredictable life events; and (4) families have few resources available and must rely on governmental assistance to meet basic needs.
Table 14-1
Data from Carter, B., & McGoldrick, M. (1989). Overview of the changing family life cycle: A framework for family therapy. In Carter, B. & McGoldrick, M. (Eds.), The changing family life cycle: A framework for family therapy (2nd ed., pp. 3-28). New York: Gardner Press; Fulmer, R. (1989). Lower-income and professional families: A comparison of structure and life cycle process. In Carter, B. & McGoldrick, M. (Eds.), The changing family life cycle: A framework for family therapy (2nd ed., pp. 545-578). New York: Gardner Press; and Hines, P. (1989). The family life cycle of poor black families. In Carter, B. & McGoldrick, M. (Eds.), The changing family life cycle: A framework for family therapy (2nd ed., pp. 513-544). New York: Gardner Press.
Families with Disturbances in Internal Dynamics
Some multiproblem families have disturbances in internal dynamics. Such families are often unable to provide for security, physical survival, emotional and social functioning, sexual differentiation, training of children, and promotion of growth of individual members (North American Nursing Diagnosis Association [NANDA], 2009; Tapia, 1997). These families are characterized by insufficient internal support, frequent or intense emotional conflict, inability to conform to societal expectations, and acting out of family members. It is unclear if disturbances in dynamics lead to more family problems or if response to problems leads to unhealthy family dynamics.
Family systems theory provides some thoughts about how the level of health of a family might develop. Multigenerational patterns that are passed down from one generation to another can be adaptive or maladaptive. There is a great tendency to repeat these patterns, especially considering that the family members have known no other family experience. Doing what an individual knows, even if it brings unhappiness and failure, is often easier than is changing behavior to something unfamiliar and unknown.
The level of differentiation of a family is a crucial variable in the appearance of symptoms (Kerr & Bowen, 1989). Families have varying levels of differentiation or ability to separate emotion from thought. Families on the low end of the continuum have greater difficulty living their lives in a thoughtful way. Instead, these families respond to situations automatically in attempts to manage their high levels of anxiety. At the opposite end of the continuum are families with the ability to distinguish thought from feeling. These families have members who are able to think of themselves as separate persons as well as group members and who can define life goals and pursue them in a thoughtful way. Families on the thoughtful end of this continuum have fewer life problems than do families that are caught in automatic emotional reactivity. Most multiproblem families tend to fall on the more emotional side of differentiation of self. Family theory suggests that these levels of differentiation are transmitted from generation to generation through the process of projection, which is the degree of the child’s relationship dependence or the extent to which each child is involved in maintaining the emotional lives of the parents. Some researchers suggest that stressors and events that occur during the formation of early attachments predispose the parent–child relationship to problems. Separation of premature infants from their parents, prolonged hospitalizations or illness, unexpected crises such as homelessness or imprisonment, deaths, and emotional illnesses are examples of disruptions in family life that can interfere with parenting and the child’s early development. Tension or lack of nurturing during the child’s earliest interactions influences the growth and development of the child and the child’s subsequent ability to nurture his or her own children. Not only multigenerational patterns but also perhaps even basic emotional health is passed from generation to generation.
Box 12-4 contains a list of healthy family characteristics. A comparison list of characteristics of families with disturbed internal dynamics is presented in Box 14-2. The multiproblem family may have disturbances in many of these areas, for example, inadequate support, multiple stressors, and high levels of anxiety. Multiproblem families with disturbances in internal dynamics may also have dysfunctional family boundaries, unhealthy communication patterns, dysfunctional expression of emotion, inadequate problem-solving skills, underorganization or rigid organization, unclear roles, and repetitive patterns of interaction that blame or shift responsibility.
Scapegoating, or identifying one family member as the problem, is one pattern that may be used. Distancing and cutting off of family members can occur when the anxiety rises to the point that family members can no longer tolerate contact with each other. In some instances, it not unusual to see members of a family who live on the same street but have not spoken to each other in years. Repetitive patterns of emotional conflict, in which the conflict seems to be resolved and then erupts again, do occur. These families often contain many active and interlocking triangles and may use this pattern with outsiders when tension rises. Triangling in the social worker, police officer, or nurse helps relieve anxiety.
Resilience
What makes a family resilient or adaptive? What are the characteristics of families that are able to bounce back from stressful experiences?
Garbarino (1992, p. 101) defined resilience as “the capacity to develop a high degree of competence in spite of stressful environments and experiences.” The term resilience has been used to describe an individual’s response to adversity. Many researchers propose that some trauma or major stressor must first be present for resilience to develop. This view suggests that an individual develops resilience while experiencing trauma within a dysfunctional family. In contrast, the concept of family resilience proposes that family resilience parallels individual resilience. Family resilience may develop in response to a specific adversity, but it may also be a response in any family facing risks in life (Patterson, 2002). Family resilience can be defined as “the ability of the family to respond positively to a situation and emerge feeling strengthened and more resourceful than before” (Simon et al., 2005, p. 427).
Each family has risk factors and protective factors that work to promote competence to handle stress. McCubbin (1998) suggested that the protective factors are the family’s coherence and hardiness. Coherence is a fundamental coping strategy in which the family emphasizes acceptance, loyalty, and shared respect and pride to manage the stressor. Hardiness is an “internal sense of control of life events and its meaningfulness and a commitment to learn and explore new experiences” (McCubbin, 1998, p. 5). Lietz (2007) studied family resilience and uncovered several protective factors that increase resilience. They are internal and external social support, boundary setting, the ability to take action or take charge, and communication.
The resilient family will proceed through several stages after the presentation of a stressor: struggling to survive, adapting, accepting, growing stronger, and sometimes helping others (Lietz, 2007). This type of family creates an emotional atmosphere that fosters trust, cooperation, and acceptance; but more importantly, a sense of hopefulness is maintained. The family has several coping strategies, including using insight, humor, spirituality, creativity, and boundary setting. Most important, the family will be able to take charge, communicate with each other and the outside, and use the support of each other and external sources. Finally, the resilient family engages in productive and adaptive activities to meet the family’s own needs and to meet society’s expectations.
Responsibilities of the community/public health nurse
Families that are defined as multiproblem families are often the most challenging, most time-consuming, and least rewarding families in a community/public health nurse’s caseload (Fox, 1989). Nurses often need support to continue working in situations in which their efforts are frustrated. As experienced and educated health care workers, we often expect that we will have the answers and that our expertise will be accepted and acted on. This assumption is in direct conflict with the family’s perception of a health care worker as someone whom they are not able to trust and whose advice does not seem to affect their quality of life. If it is assumed that families have the right to self-determination and know what is best for themselves, then a conflict exists between the two ways of viewing family care. Each community/public health nurse must examine his or her own values and resolve this conflict in order to be effective in caring for multiproblem families.
As a result of interviewing 32 public health nurses in 14 communities representing 50,000 people in rural Canada, Browne et al. (2010) revealed that nurses understood that “social conditions are quite literally embodied in people” (p. 29). This means that the nurses recognized that families live through their past and present social conditions and are shaped “biologically, psychologically, and interpersonally” by them. The nurses worked simultaneously with family risks and capacities, vulnerability and safety; recognized that risks and situations can change; and were flexible with their nursing responses. Nurse–family relationships were facilitated by the nurses being nonjudgmental, fostering participation, and creating “safe spaces” in which family members could be open about their circumstances.
Assessment
Most of the time, but not always, multiproblem families operate at a low level of functioning, according to Tapia (1997) (see Table 13-5). Families at level I (chaotic families) are characterized by disorganization in all areas of life. In these extremely immature families, adults may be unable to fulfill their roles and responsibilities. Children or others may be expected to assume these roles, which is inappropriate and interferes with normal growth and fulfillment of nurturing needs. Physical and emotional resources may be inadequate. Family members are often depressed, with a sense of hopelessness and powerlessness. These individuals may have little self-esteem, a high sense of failure, and little reason to trust another health care worker who comes with promises that are most often unfulfilled.
Families at Tapia’s level II (intermediate families) are able to meet their basic survival needs but are immature and unable to meet many needs of family members. These individuals are often defensive, unable to trust, and alienated from the community. However, these families retain some hope and have some capacity to change and improve their functioning.
Assessment of multiproblem families includes a three-generational time frame because many families are cooperating across generations to meet basic needs. Assessment should especially evaluate the interactions among the family’s many needs, strengths, styles, functional level, coping patterns, resources and supports, and past experiences with health care workers (see Chapter 13). Special areas of focus should include the number and duration of stressors the family has experienced over time, the family’s perception of the events, an estimation of the severity of any symptoms the family may be experiencing (e.g., depression, alcohol use, physical abuse), and contacts with other health care resources. Tools such as the Family Inventory of Life Events (FILE) by McCubbin and Thompson (1987) or the Family Systems Stressors–Strength Inventory (Mischke & Hanson, 1991) may be especially helpful. The Family Coping Index (Lowe & Freeman, 1981) helps determine coping patterns, and the eco-map (Hartman, 1978) helps describe the family’s connection with resources.
Planning
After analyzing the data, the nurse will have a better understanding of realistic goals and expectations of what will happen in his or her encounters with the family. Perfection should not be sought. Goals should be concrete and realistic and mutually defined by the family and the nurse. In the presence of what seem to be overwhelming problems, identifying family strengths is sometimes difficult for a nurse. The nurse’s values set up expectations that block his or her identification of strengths. As the community health nurse truly listens and asks the family to identify its strengths, they become more apparent. As discussed in Box 12-3, Otto (1973) was one of the first to emphasize family strengths. Karpel (1986) suggested that some personal strengths such as self-respect, protectiveness, caring in action, hope, tolerance, affection, humor, and playfulness are often hidden. Relational strengths include respect, reciprocity, reliability, the ability to repair, flexibility, and family pride. Karpel also suggested that loops of family interactions repeat themselves to amplify resources and that symptoms can be reframed to allow people to see the situation in a positive way. For example, suppose one of the daughters loses her job. When her sisters and brothers become aware of this, the situation is redefined as one that allows her to spend more time with her young children. The sisters and brothers engage in a series of telephone calls and conversations in which all agree to offer a little financial help and a lot of emotional support until the situation improves. This family has maximized its resources.
Alterations in the Nurse–Family Relationship
Sometimes, the multiproblem family’s past experiences with health care workers have led the family to distrust other encounters. After hoping to have some of its needs met and then being left with problems that are unresolved, the family may pull away or be reluctant to engage with another health care worker. Especially when values are different, the family may play along with the nurse, feeding the nurse inaccurate information that the family believes he or she wants to hear. Members may agree to make appointments and then not keep them, preferring to break the contact rather than be disappointed. The family may test the nurse while trying to determine his or her reliability and consistency. The nurse may even interpret this action as manipulation. However, this action is frequently a pattern that the family has found helpful in the past to maintain some control. Zerwekh (1992) described three responsibilities of the community/public health nurse in response to this pattern: (1) locating (tracking down) families, (2) building trust, and (3) building strength.
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