Chapter 12 Leadership through alongsideness
Introduction
Our intention is not to produce a model of good leadership practice for others to follow, but to share our experiences in the hope it is valuable to you in your reflections. We chose a first person narrative (Connelly & Clandinin 1990) to show the developmental personal nature of our learning and to bear you, the reader, in mind as we write. Leadership qualities appear indistinguishable from effective health visiting relationships and each of us felt clear before we began that leadership is not about being first, best or most powerful. Our enquiring process clarified relationship qualities and skills we now find effective and leadership involves using professional power by acting in ways that influence change towards agreed aims. Sharing power to support change may be the most important feature of the public health practice we find effective. We utilise knowledge available to us from a range of sources, including our own beliefs and values, as we share with you our search for improved understanding in a process we now call practice-as-enquiry. Our leadership styles are guided by personally held interpretations of professional values that we independently developed through practical experience. The similarity of our explanations is of interest to us because we both intend promoting collaborative thinking and action planning with clients, communities and colleagues for improving how we all work together. This chapter explains how and why we arrived at our leadership styles and improved our effectiveness. We will tell our stories separately before integrating themes. Box 12.1 introduces the values and skills that we now recognise are individually constructed in our alongside leadership styles.
Ruth’s story: practice development
My interest in community development in a large rural village emerged from an MSc in Health Studies (Grant 2001). I used interviews, a focus group and questionnaires to understand lay perspectives of health and for identifying service requirements for those in greatest need. Here, I explain my learning through reflection on community development activity following the MSc. I now call it ‘micro’ public health. I will show how my understanding of leadership for promoting social inclusion developed.
Although the reflective journey is mine, I would like to acknowledge my colleague Annie Saberwal, who was a source of excellence and unselfish inspiration to me. The journey began when health visiting was required to change from universal child- and family-focused public health work to targeting those with greatest health needs (Department of Health (DH) 1998a). Health visitors were encouraged to adopt population-based public health roles in order to address the needs of their communities. At the time there was little information on methods for working effectively with populations (Parston & Timmins 1998). Statistical data I had gathered for an area health profile gave little insight into the needs of the population. I was aware I had not worked effectively with families who were poorest, socially excluded and suffered the worst health. Although, like all clients, they were offered a universal service, this group did not call on my support as often as more articulate, affluent members of the community. I believed this indicated they did not feel comfortable with me, although research shows this was the group most likely to suffer ill health in my case load (DH 1998b). For this reason I decided to find a more effective method of improving health in this population. At the same time, the government encouraged practition-ers to work towards a range of interventions to improve the nation’s health and set primary care trusts (PCTs) a number of targeted objectives (DH 1999, 2000). Until I had a clear picture of the health needs of my local population, I did not know how to begin.
Discoveries
In research for an MSc in Health Studies (Grant 2001), I discovered some of the health needs of the large rural village (5700 population) in which I work. The aim of the study was to determine the unexpressed health need of the population in order to maximise health gains and target health inequalities. Community participatory appraisal (CPA) is frequently used by the World Health Organization to gather information on health needs of a population where little is known (Ong & Humphris 1994). CPA research has shown that professionals are often unaware of community benefits that may be obtained from relatively simple solutions (Sewell & Wade 2000). Obstacles to change are sometimes revealed by the process and communities empowered to act. Furthermore, communities hold knowledge that can influence the development of polices and service provision that are more likely to be effective (Johnston & Mayoux 1998). I undertook a needs analysis to determine lay perspectives of health using CPA methodology (Grant 2005). Semi-structured face-to-face interviews with 11 adults were analysed followed by a focus group with seven adults. A questionnaire was developed based on data generated from interviews, the WHO Quality of Life study (WHO 1998) and Orientation to Life questionnaires (Antonovsky 1993). The amalgamated questionnaire was posted to 350 adults randomly selected from the general med-ical practice list. I elicited a good response (40%). The predominant feature of the interviews and focus group was that the divided nature of the village impinged on social cohesion and health of the population. Questionnaire respondents suggested a link road to the village, a supermarket, banking facilities, evening doctors’ surgeries, a State-run nursery, wrap-around child care and leisure activities. An important finding was the level of psychological distress amongst males, particularly in the 18–25 age group. To the Quality of Life question about anxiety and despair, 12.5% of most male age groups reported feeling severe anxiety and despair ‘frequently’ and ‘always’. This increased to 42% in the 18- to 25-year age group.
Other findings pertinent to the poorest population in the social housing area, was rural isolation (8 miles from the nearest town) and lower educational achievement and life expectancy. This group showed a ‘sense of coherence’ profile similar to more affluent owner occupiers in the new estate, but with more respondents in the highest and lowest scoring categories (Antonovsky 1998). Plotted on a graph, a parabola emerged demonstrating normal distribution of the ‘sense of coherence’ scores across the whole community. My purpose in determining the ‘Orientation to Life’ of the population by using Antonovsky’s ‘Sense of Coherence’ questionnaire was so that I could discover if there was a group of individuals who would have greater health needs in the future. These data revealed that the 45- to 65-year-old age group has the most ‘low’ scorers, who have a poorer sense of coherence and are, therefore, less likely to cope well in adversity as they age. This information, plus my knowledge of families, informed my decision to work at addressing the health needs of the poorest population. Many of the low-income families lived in the same social housing estate, thus they also belonged to a geographical or neighbourhood community. I spent time learning all I could about the local voluntary and statutory service provision.
Containment, reciprocity, reassurance and encouragement
Initially I was exhausted by group members. Some people shouted at me about what they wanted, some expressed doubt about my ability to help them. Others spoke harshly, were rude and lacked confidence that the group would continue. Every week a traumatic event occurred and members moved from one house to another retelling the story. I surmised that a great deal of energy was spent in anxiety and distress. Perhaps this was why many appeared to struggle emotionally and lack emotional literacy, and the energy to develop their lives. One week the crisis was a domestic violence incident in which a man, armed with a knife, chased his screaming wife around the estate. Another week youths poured petrol onto a cat and set fire to it. Yet another week, a 33-year-old woman in the third trimester of pregnancy died of a heart attack. Her baby was delivered by emergency caesarean and died 3 months later. These examples demonstrate the ser-ious nature of the crises people commonly experienced on the estate. Some of the residents act as ‘emotional amplifiers’ spreading news that affects other people. Many residents have poor emotional literacy and problem-solving skills and, thus, share in the trauma these experiences generate. My colleague, Annie, and I interpret this emotional cyclone to be the result of poor physical and emotional health. We concluded that in order to help we needed to buttress their emotional health whilst teaching them new emotional literacy skills.
From the start of the group I became aware of using psychotherapeutic skills, particularly ‘containment’ (Shuttleworth 1999). Containment involves emotionally holding distressed people until they are no longer afraid and can begin to cope. I became conscious of how I Iistened supported and encouraged people. I also used Brazleton’s notion of reciprocity. I realised that by being sensitive and responsive to moods I could enable the members to cope with their problems (Brazelton 1992). Some said they found this helpful. Each meeting a crowd gathered and reported the latest disaster. After Annie and I helped them think it through, they relaxed and started chatting. Some began to think creatively about activities for the group. Gradually, we witnessed people becoming more optimistic. This role became an important part of our work. I now recognise that by using different skills I began to develop a style of leadership useful for this particular depth of need.
Slowly, as confidence in Annie and me grew, I found members would run to the surgery and burst in on us when they were worried. I was delighted to realise they had become comfortable with us and sought us out to share their difficulties. It made me aware of the complex, time- and energy-consuming nature of the problems people frequently faced. One day a very fat young man ran sweating into my room to tell me that two men were dealing drugs in a car outside his home. He was angry that they were ‘shooting up’ and throwing discarded syringes in the gutter in front of his children. These men threatened him and he was afraid. Not knowing how to handle the situation he ran to the surgery to be comforted and to seek advice. I realised that sometimes I must be prepared to give advice and accept the lack of knowledge in some areas. I identified advice amongst my leadership styles. Some people expected me to know everything and to be able to sort out all their problems. I felt overwhelmed by the burden, but my growing respect for these families made me realise that if they can learn to carry their awesome burdens, then I have helped them in a small way. I observed that as families learn to put down other people’s problems they become clearer on how to tackle their own. My understanding grew about the impact of living in rural poverty in an estate where families with multiple problems were housed. I worked at attracting services to the area and in time was joined by the Citizens Advice Bureau outreach worker whose knowledge and help about welfare benefits, debt management and many other topics has been invaluable. Annie has ably demonstrated her wonderful art and drama skills by producing an act for the local community play and running a hugely successful ‘POP Idols’ competition, as well as continuing to carry a great deal of the daily practice management.
I was amazed at the resilience of group members and began to understand the ‘Sense of Coherence’ scores from Antonovsky’s Orientation to Life questionnaire I had used. They appeared not to lack self-esteem, but to have heightened sensitivity to problems experienced by their neighbours. On the whole, many appear to feel good about themselves, but to have little resilience to cope with emotional challenges. General practitioners reported reduction in frequency of consultations amongst people who attend the group and began recommending it to other patients who frequently attend the surgery. During the last 2 years, six lifelong smokers have given up, with support from a smoking cessation specialist who comes to the group. Other resources and activities are listed in Box 12.2.
Understanding my values
Members frequently experienced the local police and doubted their neutrality. Early in the life of the group they agreed to invite the community policeman to a meeting. The policeman was ill at ease, and members were angry and shouted at him about all the injustices they had suffered. He was patient, but he did not come again despite repeated invitations. Two years later a family was terrorised by a group of youths who rammed their garden fence with a car and smashed the double glazed windows with baseball bats. When the man opened the door the youths threatened to hit him too. Later, I heard his partner telling another that she was glad a different officer had attended her call, because their community policeman had a bad leg and could have damaged it dealing with the youths. She was full of praise for the officer who attended. I realised that some members seemed to regard police with less suspicion.
Whilst facilitating this group I have spent time debating whether what I am doing amounts to cultural hegemony. Despite seeking to work with clients using a bottom-up approach, I realise the norms and values I bring to my work are those of an educated professional and I may be imposing them on the group. I believe I act for the benefit of members. Through reflection with colleagues and group members in an action research process, I am becoming clearer about what we are trying to achieve. I await independent evaluation by students from Bath University and look forward to learning how I can take the group forward. See Box 12.3 for some outcomes.