Family responses to ill health and admission to hospital

Chapter 9. Family responses to ill health and admission to hospital

Sarah Dowle and Sally R. Siddall



LEARNING OUTCOMES



• Discuss the difference between the number of sick children and the number of hospital admissions.


• Detail the various coping strategies commonly utilised by families who have sick children.


• Explore parental reactions/responses to sickness in their child.


• Consider the nature and implications of hospital admissions – planned versus unplanned.



Introduction



The child’s family, notably the parents, are usually the first to recognise illness and to act on the changing verbal and observational cues gained from knowing their child so well. It is important to remember that the majority of sick children will not require hospitalisation, or even a visit to their own GP, but will be managed by a range of skills and advice gained from previous experience and from others. Recognition of the potential difficulties and coping mechanisms utilised by healthy families and their children requires consideration. The child and family often regard admission to hospital as a serious consequence of ill health, therefore setting the scene for the child and family to be apprehensive, fearful and anxious. Hospitalisation has long been recognised as being a potentially stressful time for children and families alike (Darbyshire 1994). Health professionals on the admitting ward may well consider the child’s illness to be relatively ‘minor’ in terms of morbidity and sometimes fail to anticipate or recognise the family’s overwhelming concern. Unfamiliarity with both the situation and the organisational boundaries – the need for compliance, disruption to the family unit and the overall impact these variables have on the family – must be considered throughout.

This chapter seeks to investigate the decision process that leads to a child being admitted to hospital and looks at how the child and family might react in this situation. It will consider both planned and unplanned hospital admissions and consider the socialisation process associated with ill health.


Statistics


Perhaps the most useful activity to set the scene for this chapter is to establish how sick children are managed by the family and by the health services. This will provide an understanding of ill-health episodes families experience with their children and also the ratio of primary and secondary care episodes. What will be more difficult to extract is how many children become ill and yet do not see a GP or are referred to the hospital. It will also be useful to see if there are any trends in age groups of children being referred to the GP or hospital:



• 19% of consultations with GPs and 15% of practice nurse consultations are with the 16-year and under age group (McCormick et al 1995, Office for National Statistics 2005 (General Household survey 2001/02)).


• The most common childhood system affected is respiratory – accounting for 27.6% of consultations (Health Committee 1997).


• 80% of all episodes of acute childhood illnesses at home are reported to be managed without recourse to health professionals (Department of Health (DoH) 2003).


• One in 10–15 children will be admitted to hospital between birth and the age of 16 (DoH 2003).


• 70–90% of health care takes place within the family – this includes the care of all family members, not just children (Kleinman et al., 1978 and Scambler, 1997).


• A random sample study found that 26% of respondents with at least one severe symptom chose not to consult a doctor (Hannay 1991).


• A subsequent study established that nearly 50% of mothers (sample size 52) identified illness symptoms in their child yet did not seek medical intervention (Cunningham-Burley & Irvine 1991).


• In 2001/02 16% of health service expenditure was spent on children under 16 years of age. On average, £259 is spent on each child aged between 5 and 15 per year, and £1,172 on each child under 5 years of age, including births. This can be compared with £3,315 per year spent on adults over the age of 85 (Office for National Statistics 2005.)


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Consider the statistics outlined above in your learning group:


• What is the most important consideration for nurses in caring for sick children in the community or the hospital setting in terms of age at time of illness?


• Consider the range of nursing skills parents are likely to have as a result of such regular exposure to child ill health.


Coping strategies commonly utilised by families with a sick child


It is suggested there are three inter-related and overlapping arenas in which health care takes place – the ‘popular’ sector (or family wisdom), the ‘folklore’ sector (involving cultural and personal beliefs about health care) and the ‘professional’ sector (Kleinman 1980). It is important for the children’s nurse to understand and recognise the importance of these care arenas, as families will usually arrive in the hospital setting with a range of knowledge and interventions taken from the first two sectors that can assist, support and direct the nurse during the admission and planning process. Families are integral to the care and support of their children therefore the impact of any health care intervention must be considered within this context. An understanding of the theories seeking to explain how families cope and interact under stress is essential and several theories have been postulated and subsequently applied to children’s nursing (Crawford 2002).


Family wisdom


Much research has been undertaken exploring how parents cope with their sick child, particularly in relation to the provision of care (Helman, 1994 and Oakley et al., 1994). It is important to remember that families have to experience an ill-health situation to learn how to handle the consequences. Advice and help are readily offered and sought from within immediate family and friends. Some of the advice may be sound and ‘evidence based’ (e.g. the more a child sleeps, the better he or she grows), whereas other help may be more dubious and based on ‘old wives tales’ (e.g. feed a cold, starve a fever) (Seabrook 1986). Either way, if the child is seen to improve, it is unlikely that external help will be sought such as from the health visitor or GP. This then sets up an ‘encyclopaedia’ of knowledge that is held by the family and used again as needed.

Helman’s work (1995) utilises the ‘germ theory’, whereby people regard an illness being caused by ‘invading germs’ and describe the illness in terms of hot/cold and wet/dry symptoms. Once identified in these terms, a visit to the doctor enables the parent to articulate their concern. Research investigating mother’s understanding of the causation of illness has revealed significant and useful data for children’s nurses to consider. Pill & Stott (1982) found 11 categories of illness causation; five of these were deemed to be external, and therefore out of the parent’s control, and the other six were internalised, and therefore within the parent’s control (Table 9.1). The factors in the first column perhaps lead the parent to believe that the responsibility for the illness and subsequent management are the responsibility of others, whereas the factors in the second column require an acceptance of responsibility and therefore an agreement to some positive action by the parent to alter the cause of illness.

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• Do you think nurses and doctors work on a similar view in defining the cause of a child’s illness so that an effective plan of care, including relevant health promotion/education, can be devised?


• Is there a risk of stereotyping people by using this approach, because of their dress; personal hygiene; personality?


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On your own and in your learning group:


• Reflect on methods used within your family to help manage illness.


• Did they work?


• Can you establish if they are evidence based by today’s approach to a similar situation?


• Consider the value of the following ‘folklore’ advice:


• ‘Don’t wash your hair when you are having a period’


• ‘Salt in the bath water helps to heal skin wounds’


• ‘Make children sick by getting them to drink salt water if they say they have taken a noxious substance’


• ‘Put vinegar on a bee sting, bicarbonate of soda on a wasp sting’
























Table 9.1 Categories of illness causation
(adapted from Pill & Stott 1982)
External causative factors Internal causative factors
Environmental: the weather, pollution, pesticides Type of person you are, e.g. more nervous/unhappy
Heredity and susceptibility Being ‘run down’
Individual susceptibility ‘Way of life’
Germs, bugs, viruses, infection Diet
Stress, worry Hygiene

Neglect, not looking after yourself properly

An opposing view is that the development of professional and statutory services has served to erode the need for families to rely on their own family knowledge and skills in caring (Graham 1984). For example, SureStart is an excellent new multiagency (non-statutory) service where parents can seek out a range of advice and guidance and are actively encouraged to do so (Department for Education and Skills and Department for Work and Pensions 2005). The availability and ‘free at the point of delivery’ health service can serve to reduce the importance of creating the encyclopaedia of family knowledge. The emergence of a ‘blame culture’ might also have challenged the reliance on family wisdom, resulting in a reduction in the number of parents taking responsibility for healthcare decisions.

Sociological research examining the domestic management of children’s healthcare tends to relate to the mother (Broome et al., 1998, Pitts and Phillips, 1998, Helman, 1994 and Broome et al., 1998). There is further useful analysis of several studies considering the child and family’s response to acute illness in children (Youngblut 1998). Nurses need to familiarise themselves with different cultures and how culture can also influence the family’s decision to seek its own solution or to utilise health professionals.

Socioeconomic conditions may also influence decision making. Limited access to health centres, chemists and hospitals because of transport and/or cost can serve to delay the decision to seek medical help. The provision of health care within the family is often related to the family income. The mother often acts as housekeeper and carer and therefore recognises the need to provide sufficient resources to meet each role effectively. However, if the ‘carer’ needs outweigh the ‘housekeeper’ needs in terms of resources, time and cost, then the family/mother will go without essential provisions. This compromise can lead to conflict within and outside the family (Graham 1984).

Single-parent families invariably have less income than dual-income families, and sometimes less access to other family members and so less emotional and practical support (Blackburn 1991). This can influence the management of a child’s illness, with the parent visiting the GP more frequently for reassurance and guidance, or not visiting a GP because of the cost of travel and lack of companionship to share the concerns of the health status of a child. Stereotypes of the ‘overconcerned’ parent or ‘negligent parent’ can arise in these instances, and yet there is a sound rationale for why this behaviour might arise.

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• What is meant by ‘hot’ and ‘cold’ illnesses as expressed by many Asian cultures? How are each type generally managed?


• Consider the cost, in economic and practical terms, for a parent with three children under the age of 5, living on a farm, to travel to town or health centre to seek advice, equipment and/or treatment for a sick child?


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On your own and subsequently in your learning group:


• Explore your town, supermarket, pharmacist and health centre, and collect a range of available leaflets on helping the sick child. Do they seem to be written for the parent’s needs?


• Scan the supermarket shelves to see the range of medicines that are available to families. How are they packaged? Child friendly, colourful, etc. Do they offer easy-to-read instructions, dosage preparations and age restrictions?


Community support


Families have a further range of support to help them in deciding which is the best course of action for their ill child, for example accessing the local pharmacy for advice or just a scan of products that may help (Birchley 2002). Many weekly and monthly family-type magazines contain useful healthcare advice, as do the daily papers. Searching the internet for advice is also done on an increasingly regular basis.

As a result of the explosion in internet usage, many government agencies, in particular the Department of Health (DoH), have set up websites to support the enquiring mind. Several innovative health services have also been created to utilise this latest technology. One such service is NHS Direct. It offers both a telephone service and an internet site (DoH 1997, National Audit Office 2002). Investigate one of these and write up what advice is available for parents to help their sick child and whether the advice is something nurses would undertake in their role in a ward or community setting.

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Visit a common search engine such as Google:

and find out how many hits there are for the medical condition of:


• toothache


• diarrhoea


• conjunctivitis.

Look at the first five English ‘hits’ for each condition and see how helpful they might be to someone wanting to manage this condition without recourse to a healthcare professional.


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In your learning group: discuss what use any of you have made using NHS Direct.


• Who do you believe it is aimed at?


• Do you know the telephone number?


• Where is your local NHS Direct call centre based?


• Have any of you visited this centre to establish what they do? Would it be useful to ask your course tutor to arrange such a visit?

Read the article by Hall (2003) about the NHS Direct and children’s care.


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Visit the NHS Direct online website and seek out the advice for ‘tummyache’ in children:


B9780702031830100098/seminar.jpg is missing Seminar discussion topic


In your learning group:


• Discuss how useful a site like NHS Direct is for anxious parents, concerned children and other child carers such as grandparents and child minders.


• Spend 10 minutes exploring the internet to see what other government ‘online’ support services there are for people, particularly the child and family. Make a list of these and share them with your colleagues for future use.


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In your learning group, select one of the following ‘support networks’ that you wish to explore in more detail:


• evidence-based home care


• ‘folk lore’ remedies


• pharmacy support


• available health education leaflets


• NHS Direct.


Primary care support


All children have a right to regular health support and health checks during childhood (Hall & Elliman 2003). The midwife takes a full responsibility for newborn babies up to 28 days and a named health visitor shares and then assumes this responsibility 28 days after birth (Statutory Instrument 1992 No. 635). This health promotion/education role enables parents, and children, to learn about healthy choices and safe ways of dealing with everyday situations, from preventing accidents to managing illnesses. The health visitor will refer health concerns to the family’s GP as necessary and make other referrals to other practitioners if felt appropriate; for example social services, speech therapy and child development centres.

Additionally, teams of appropriately qualified nursing staff working in the child’s home, school and community settings can provide health care. These teams can consist of school nurses providing health promotion and education within the school setting, offering health interventions, support for children with long-term illnesses and the empowerment of child and family in maintaining the integrity of the family unit.

Likewise, community children’s nursing teams (CCNs) provide a link between the secondary and tertiary services and the primary care provision (DoH 1996, Kelly 1998). They typically provide ongoing care interventions for children with known illnesses or following discharge from hospital for routine or emergency health care.

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One of the roles of the midwife following delivery is to help establish the feeding needs of the child with the mother/parents.


• What sort of advice will be given during this time that will provide parents with an insight as to how to cope should they have concerns about their baby’s feeding routine in the future?


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A health visitor undertakes a routine hearing check on a 9-month-old baby:


• What teaching and learning is likely to take place for the baby’s parent(s) in attendance?


• How is this likely to help the parent(s) at a later time in terms of coping strategies if the child becomes unwell?


Immunisation


Immunisation is the use of a vaccine to protect against a specific disease. Vaccines act on preventing disease in one of three specific ways:


1. Administration of a live bacteria or virus which has been attenuated so it does not cause the disease.


2. Administration of the dead bacteria/virus.


3. Administration of part of the bacteria/virus.


The fundamental aim of an effective immunisation programme is to reduce the incidence (i.e. the number of people acquiring the disease in the population as a whole) of a specific disease, with the ultimate aim of eradication where possible. It is important, however, to remember that some diseases will never be eradicated either because there is a ‘carrier’ population (i.e. people who are able to carry a disease but who themselves remain unaffected) or because of the specific mode of transfer/activity (e.g. tetanus is carried in the soil spores). Indeed, despite improvements in hygiene, nutrition, health care and public immunisation programmes, some diseases continue to cause serious complications and fatalities (DoH 2002). Equally, there are dramatic success stories: before the introduction of the measles vaccination in 1988 an average 250,000 cases/year were noted, resulting in 85 deaths. By 1999, a significant reduction to 2438 cases/year, with two deaths, was evident (DoH 2002).

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In view of the media interest in the measles, mumps and rubella (MMR) vaccination visit the following website:

Consider the advantages and disadvantages of the vaccination as it is currently offered:


• Identify the knowledge you would require as a parent considering MMR vaccination for your first child.


• As a health professional consider how you would promote the uptake of the immunisation programme.


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Consider, with rationale, the skill mix of children’s nurses employed in a community children’s nurse team. For example, should there be a member of the team with additional skills and knowledge in adolescent care?


Parson’s sick role


There is a well established, although regularly challenged, functionalist theory on how society might expect someone to behave when ‘sick’ in order to protect the individual and society (Bury 1997). This theory was originally described by Talcott Parson in 1951, and was used by many health practitioners and employers at that time to determine whether the individual was ‘sick’ or ‘ill’ (Parson 1951). Medical support and employment support would then be offered according to this analysis.
Jun 15, 2016 | Posted by in NURSING | Comments Off on Family responses to ill health and admission to hospital

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