Rhythms and regularities in a musical bridge

6Rhythms and regularities in a musical bridge


Medics wheeled the ambulance gurney through the admissions gate and locked it into position, releasing Aaron’s wrists from the restraint straps. Aaron hoisted his body to standing, blinked under the hall lamp, and lunged for the doctor’s throat, clenching tightly. Staff shouted for help. Aaron had to be tied to the restraint chair twice that first afternoon and then again the following day. Word got around: the new patient is big and out of control. The unit’s clinical and administrative leaders announced an emergency meeting as the nurses closed off doors in an office-wing hallway, creating, in effect, a cocoon of locked space where Aaron could pace back and forth without hurting any of the more fragile patients.


This was the epitome, to our minds, of an interagency disconnect. More than six feet tall, weighing nearly 300 pounds, possessing, evidently, only a smattering of words, Aaron presented with a dual diagnosis – psychiatric conditions co-occurring with intellectual and developmental disabilities. He lived all his life previously in the care of his mother and father, who’d supported dressing, bathing, eating, toileting, and so on – the multitude of daily tasks Aaron couldn’t perform alone. But Aaron’s aging and increasingly infirm and frail parents could no longer find the strength to care for this complicated, physically demanding and now 30-something year-old son. It was a story achingly familiar in the human-services business: transitions taken the hard way.


Prior to his admission, Aaron had been placed on a regional “priority” list awaiting assignment to residential housing, as case workers scrambled to identify open bed space among the limited group which specialized in care for severely developmentally disabled adults. The first referral rejected Aaron, as did the second, staff noting that psychiatric comorbidities and a history of aggression rendered him a risk to their other residents. A facility finally was found which would accept him, but in the unfamiliar setting, Aaron fared poorly. He stopped eating, refused bathing or changes of clothing, smashed down a door, urinated on the floor, shattered glass windows, and yanked a staff member to the ground, ripping out clumps of her hair. Staff noted a tendency to pace irritably and hold his left hand to his ear, as if soothing an earache or listening to a voice. There were multiple back-and-forth transfers over subsequent weeks to a local emergency room. Clinicians agreed: Aaron was not tolerating medications normally prescribed to manage aggression or psychotic symptoms. He needed, for the time being, a more intensive level of care.


And so it came to pass that a lumbering, wordless young man, gripped by terror and drenched in urine and feces, without his parents and torn from the comforts of a home he’d known all his life, was strapped by the wrists and ankles to an ambulance gurney and delivered to the front door.


Estimates vary on the proportion of people with intellectual and developmental disabilities who experience co-occurring psychiatric disorders, but studies suggest it might be as many as a third (Quintero & Flick, 2010). In administration and funding, the mental health system has operated separately, historically, from the system of services for intellectual and developmental disabilities. On both sides of the institutional gap, agency staff feel ill equipped to provide adequate services for clients with multiple complex needs, as care protocols and treatment providers specialize, for the most part, in one set of issues or the other. Within each system of care, personnel tend to expect the other to provide services. Aaron exemplified, it seemed, the dually diagnosed patient who “falls between the cracks” – whose multifaceted needs seem to surpass the capacity of any single institution or agency to address them.


The records accompanying Aaron were sparse at first, further complicating our initial efforts to determine what, exactly, had been “done” in the past which was helpful to him and what, based on experience, we might avoid repeating. To what programs or treatment protocols, now, might we safely assign him? The chart history indicated a hodge-podge of diagnoses: a mood disorder, an anxiety disorder, autism, among others. Other than these, we knew little. Watching Aaron’s anxious pacing, his compulsive restlessness, his obvious suffering, we struggled to define clear clinical treatment goals – the formal objectives which serve as a starting point for intervention decisions. Regarding his baseline pattern of functioning and personal strengths, we knew essentially nothing. What, in such a case, could be the clinical target for our work? The nurses wrote a traditional care plan: hygiene, nutrition, safety, routine assessment, medication compliance, and so on. But how could such a plan get started? Nobody could get near this man without a significant struggle.


Records trickled in. A social worker invested overtime in myriad interagency emails and managed eventually to engage Aaron’s parents by phone. Years previously, we learned, he had graduated from a special school. He’d shown interest in puzzles and building blocks and was well liked by teachers and peers, though his spoken vocabulary, at its peak, had never included more than a few words. Later, as a young adult, he had attended a well-regarded day program, exercised in a gym, and even, for a time, held a paid job sorting containers in a training center. His condition had declined as his parents’ advancing debility turned into a cascade of personal disruptions, derailing long-standing life routines. We saw little evidence now of Aaron’s previous level of functioning. So we reached, at first, for familiar and available tools.


Aaron shoved aside the picture board which language-limited patients sometimes use as a communication aid to point to what they need (the picture of a bathroom, for example, or a bed, or a plate of food). He snubbed ball play, ring toss, and even simple puzzles arranged on a table, angrily scattering pieces to the floor. Pop music, a perennial favorite for most patients, sent him storming truculently down the hall, swiping at his ears as if waving away flies. He made no eye contact, acknowledged no greeting, said nothing, and he responded to no toileting or hygiene prompts. Several of the mental health techs sustained bruises within the first few days trying to change Aaron’s filthy clothing and wash him. His monitoring status was upgraded to the highest level so that he could be observed by multiple staff at the same time, as one of the psychologists initiated a strict behavioral regimen – praise and snacks for any move toward cooperation with basic care. Between the locked office doors, the hallway reeked. It was not hard to miss Aaron’s almost unfathomable isolation – an exile from fundamental structures of self-care and social exchange. By trial and error, however, some intrepid evening-shift staff found that if they occupied both his hands simultaneously with juice and cookies, Aaron could hold still for just long enough to accept oral medications and allow for his brow and cheeks to be wiped briefly with a washcloth. So began, inauspiciously, Aaron’s physical care. We tiptoed around him, guarded and vigilant.


From the shift hand-off, we knew that Aaron paced the hallway nearly continuously, from early morning until late at night. From one edge of the closed-off wing to the other, he treaded along the wall edges with an almost metronomic relentlessness, single-mindedly, aggressively pushing away anyone who stood in the path of this compulsive motion. The clinical team reviewed the nursing reports with desperation every shift, searching for signs of a landing point on the lunar surface of this implacable restlessness.


Rhythm saturates social life, Henri Lefebvre, the French philosopher, has written (Lefebvre, 2004). It infuses our work and our play, our encounters with traffic and taxes and school calendars, our sleep cycles and eating schedules, our contact with nature and our contact with people. Rhythmic patterns are inscribed as a fundamental constituent of identity, reverberating in our oldest memories and fundamental sense of self. So when a rhythmic order is taken away, our bodies continue, distantly, to hear it, and we attempt, perhaps unwittingly, to reconstitute it.


The English romantic poet William Wordworth is considered the master of poetic rhythm, his huge body of work dense with a spare oscillating murmur, a determinacy that replicates, in sound, the rhythmicity of a walk in the countryside. It is said of Wordsworth that he wandered perhaps 180,000 miles in the course of his long life. His sister wrote in her diaries of the compulsiveness and single-mindedness with which he traversed, in thundering rain or in blistering heat, the small yard outside the cottage they shared (Gros, 2011).


Walking has long been associated with talking – the rhythms of steady step-wise motion bonded with the dance of voices summoning meaning in turns. Two and a half millennia ago, Aristotle founded a school of philosophy known to us as “the peripatetic” – named after the ancient Greek word peripatein, which means to walk and to converse, to engage in a dialogue while walking. We marveled, now, at Aaron’s ravenous, unending conversation of one foot in front of the other. Nightly, wobbling from exhaustion and heavily sedating medications, he collapsed into a mattress we’d placed on the floor for him. The staff covered him with blankets as he slept, tucking around the edges tenderly, pushing sweaty hair off his forehead and gazing in fearful wonder.


Psychotherapy’s aim, in general, is to teach self-talk – to help people grow a capacity for thoughtful internal dialogue. Words are chosen, ideas shared. Over time, the practice lessons between therapist and patient are internalized. And if all goes well, what was outside grows inside: the patient learns to initiate a dialogue with his own mind, to think things through. Nurses feel this keenly in our own professional version of it: we have all, at one time or another, felt the way our resolute and generous presence grows in our patients enduring feelings of solidity and security – feelings of maternal care which they absorb and learn to summon up themselves if our interventions are successful. But Aaron presented what seemed like the converse: here was a young man locked already in a rigid back and forth – a compulsive conversational motion so savagely rigorous as to be almost impenetrable. To reinsert into this lockstep oscillation the softening cadence of an external human voice – this felt to all of us to be the task at hand. But how does one enter a conversation with someone who is closed off to words? We didn’t know. So we monitored carefully for response to medications, supported hygiene and nutrition to whatever extent we could, and waited for an idea to make itself known.


Pablo Casals, the Spanish cellist, was only 13 years old when he stumbled on a yellowed package of old sheet music in a tiny thrift shop in Barcelona. It turned out to be Johann Sebastian Bach’s cello suites, six short works originally written around 1720 but subsequently mostly neglected, as musicians of the 18th and early 19th centuries considered them dry and overly mathematical, something like practice exercises. Casals fell in love with them, and, in 1936, when he was 60 years old and already world-renowned, finally recorded them. Their popularity soared, and today they are considered among the most profoundly elegant and poignant works in the classical repertoire. (One of them was played at the opening of New York City’s World Trade Center memorial.) There are six of these suites, each organized symmetrically, with the harmonic precision and rigor for which Bach is famous, and each divided into six symmetrical smaller sections. Like other music of their time, they are polyphonic, which means a multiplicity of voice lines calls out in twining layers as the work progresses, evoking a sound image of depth and dialogic exchange.


Musically, the cello suites convey the idea of a voice in plaintive conversation with itself. Composer Tod Machover (2007) tells us that the cello, among all orchestral instruments, is the one which comes the closest in range to the human voice – its lowest notes at the bottom of the basso profundo, its top ranges capable of something like the trilling of the highest soprano. I had been listening in my car on the way to work. My mind called up suddenly a comment by one of the nursing aides: “Maybe he likes classical?” Aaron’s psychiatrist embraced the idea. What did we have to lose, after all, from introducing our patient to Bach?


A few of us assembled in an office cubicle to load the material, huddled like co-conspirators around the unit MP3 player. Briefly in the morning, then at mid-day, and then again in the late afternoon, for short bouts, Bach’s elegant cello suites called down the hallway, odd notes trickling every so often through the narrow slits in the doorway out to the general patient area. Aaron did not swat them away, as he had done with other music. On the contrary: we saw from the beginning that he paused, turning his head, at first quizzically, to listen. After a few sessions of this, we gave him a chair and noted a brief serenity with which he sat himself down quietly, listening for some minutes before resuming his anxious pacing. It was, unmistakably, contact.


Over the next few weeks, an interdisciplinary team played the cello suites intermittently, at least once but usually several times a day, each time introducing new activities or milieu elements to the backdrop of their musical accompaniment. Aaron allowed himself to stand at a table as the cello spoke around him. He permitted one staff member to escort him to the bathroom, another to wash him. His restless pacing began to diminish, as he paused more frequently, and, over a period of days, he began responding to simple directions (“go wash your hands,” “sit here for lunch”) which previously had greatly irritated him. Hoping to activate whatever reserve of words might resurface from Aaron’s mysterious silence, the floor-duty staff began narrating each increment of advance: “You changed your pants!” “You used the toilet!” “You are sitting in the chair!” Aaron began pointing – to a blanket, to the toilet, to the bed, to a paper towel – initiating goal-directed communications. He agreed to play a ball game. He worked a puzzle. Slowly, with the music shepherding his emergence from isolation, he accepted many of the activities which initially had been angrily refused. Three weeks in, we re-opened the hall doors so Aaron could enter the general patient area for brief forays around the nursing station. The cello suites attracted converts: more than a handful of staff members downloaded them for personal use.


As Aaron grew more comfortable, happier and more relaxed, engaging more readily in conventional therapeutic activities with the psychology and rehab departments, and so on, and allowing more of the clinical staff into his circle of contact, we turned off the music. A warm, good-natured, and likeable personality emerged over the course of the ensuing month, and Aaron was able, finally, to transition to a richer and far less restrictive community setting.


Rhythm metaphors


What can be said about this strange episode? First, that it exemplified interdisciplinary collaboration and mutual respect on the part of diverse members of a clinical team. This is rarer than we like to admit in healthcare, and its importance cannot be overstated. Nurses: cherish those moments of genuine collaboration whenever they make an appearance. Second, that nurses played a crucial role, particularly in the beginning, as care was being initiated. Our close-range observations and round-the-clock monitoring created a picture of the patient as a person, with a style and disposition and preferences of his own, rather than a chart entry. Third, that it involved optimism, perseverance, compassion, a capacity for sensitivity and forgiveness, and a willingness to try something new – core nursing values. But in addition to these, the intervention contained, as well, the analogical structure described elsewhere in this book. Trapped at first in a communicative idiom which took the form of compulsive walking, Aaron was able to encounter in the cello’s textured counterpoint an oscillating rhythmicity, highly personal and familiar perhaps in a certain uncanny respect, but which allowed him to enter into communication with something outside his own suffering. Tender in its tones and firm in its structures – evocative or reminiscent, possibly, of something in Aaron’s previous family life – the vocal dialect of the cello enabled us to elaborate viscerally with him the ideas of regularity, communicative reciprocity, and orderly human exchange. We had found Bach almost by accident, by the luck of my having had a CD collection in the glove box of my car. But in this music of a particular texture and rhythm and color, we had identified a means for connecting to this otherwise almost impossibly distant young man.


“Little as we know about the way in which we are affected by form, by colour, and light,” wrote Florence Nightingale in 1859, “we do know this, that they have an actual physical effect” (Nightingale, 1859). The gestural bridge here – in music form – speaks to this long-standing but underutilized nursing concept. We hoped that Aaron would find friends, safety, pleasure, and purpose in his new place of residence, and that music would continue to inspire and comfort him.


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May 22, 2017 | Posted by in NURSING | Comments Off on Rhythms and regularities in a musical bridge

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