Developments in spirituality: research and education

CHAPTER 7


Developments in Spirituality


Research and Education


Introduction


Earlier chapters encouraged you to explore the concept of spirituality and the provision of spiritual care with the intention of generating self-awareness. In this chapter, we will undertake a brief review of some pioneering research that has been conducted concerning spirituality and spiritual health care. The research studies presented address both health care professionals’ and patients’ perceptions of the spiritual dimension. By reading this chapter you should gain a richer and fuller understanding of how the spiritual dimension is being perceived and developed within health care practice and education. By critically analysing and reflecting upon the studies you will build on your previous reflections, developing a deeper insight into the terms spirituality and spiritual care as perceived by health care professionals, patients and service users. The emerging educational debate surrounding spirituality and education is introduced at the end of this chapter.



Activity 7.1


Before proceeding further with this chapter, write down anything that you know and understand about the term research. You may want to consider which approach to research is used most frequently in your discipline – for example, qualitative or quantitative.


In your reflections, you have possibly written down a great deal of information concerning your understanding of the term research. The amount of knowledge and insight that you have into research may be dependent upon how much education you received on the subject during your programme of education. The glossary of terms provided (Box 7.1) is designed to give a basic insight so that you can appraise some of the studies that have been undertaken by researchers into the spiritual dimension.



Box 7.1 A brief overview of some of the most common terminology used in research


Qualitative


Research that addresses concepts that are very personal and subjective, such as individuals’ feelings, thoughts and values.


Quantitative


Research that is scientific and systematic, generating numerical figures for analysis.


Research process


A term used to describe the different stages involved in undertaking a research study.


Validity


Research is said to be valid if it actually achieves the results that it set out to achieve, or an instrument measures what it is supposed to measure.


Reliability


That a piece of research or instrument can consistently measure or be repeated over time.


Evidence-based care


Now a frequently used term that implies that health care professionals use the most up-to-date research findings to inform nursing practice.


Data


The information gained while undertaking a piece of research. There are different types of data dependent upon the type of research undertaken – numerical and descriptive.


For further information on any aspect of research, you are encouraged to consult one of the many texts that have been written on the subject (see the Further Reading list at the end of the chapter).


Studies investigating spirituality and spiritual care


A review of the literature suggests that there has been a tremendous number of research studies conducted investigating health care professionals’ perceptions of spirituality and spiritual care. Most of the studies undertaken appear to investigate patients’ perspectives, with primarily the nurses or other health care professional as an adjunct – for example, see Conrad 1985; Dunn 1993; Emblen and Halstead 1993; Highfield 1992. However, since the publication of the first edition of this book, there has been a noticeable increase in the number of international studies that have focused upon a range of issues associated with spiritual health care. Interestingly, most health care professions are now contributing to this growing body of evidence. A summary of some of these studies is provided in Table 7.1. The research undertaken in this very important area raises questions about how health care professionals interpret and provide spiritual care. The following section presents some of the research findings addressing spirituality and spiritual care. The studies are presented in chronological order and the contribution and the importance of the research findings are explored.



CAUTION


I am very much aware that research into the spiritual dimension is ongoing. The research studies presented in this chapter are by no means comprehensive critiques, nor are they exhaustive in that they represent all research undertaken at a given point in time. The purpose of presenting these studies is to demonstrate how the spiritual dimension has been addressed both theoretically and clinically during the last decade. The author has been selective in the studies presented. It must be emphasized that interest in the spiritual dimension is growing with the majority of health care professionals contributing to the emerging body of knowledge. Therefore, to reiterate, the research presented within this chapter is not representative of all research undertaken or completed within health care addressing the spiritual dimension.


As part of my PhD studies (McSherry 2004), I undertook a literature review and identified 23 international studies (Table 7.1) that utilized qualitative methodologies (for example, phenomenology, ethnography, grounded theory) with eight originating from within the UK. In terms of quantitative studies only, 10 international studies (13 including the three studies that had used multiple methods) were identified. Perhaps one explanation for this disparity in research methods between qualitative and quantitative stems from the deeply subjective and personal nature of spirituality. The personal nature of spirituality means some form of rapport must exist between the researcher and the participant. This can be hard to achieve in several forms of quantitative research – for example, survey methods that employ questionnaires. The following section originates from my thesis (McSherry 2004, pp.109–117).


I hope readers will find this section a useful starting point for reviewing the empirical literature on spirituality.



Activity 7.2


If you have access to electronic databases such as CINHAL, MEDLINE or some that are specific to your own professional group, type in the words ‘spirituality’ or ‘spiritual care’ and review the results. Ask yourself what the results suggest about this aspect of health care.


Central themes identifiable within the empirical literature


Identifiable within the empirical literature are two central themes. The first theme is linked with perceptions of spirituality and spiritual care, while the second theme surrounds the enhancement of spiritual care practices, primarily for patients or service users.


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Perceptions of spirituality and spiritual care


The quantitative and qualitative studies reviewed appear to focus predominately upon specific groups’ perceptions of spirituality. The word ‘perception’ is used as an umbrella covering words such as beliefs, attitudes and understandings of spirituality. For example, within the UK, Waugh (1992), Harrison and Burnard (1993), McSherry (1997) and, more recently, O’Driscoll (2002) have examined nurses’ perceptions of spirituality and spiritual care working predominantly within the National Health Service. The findings of these investigations validate that spirituality is perceived as a universal, multifaceted phenomenon. The findings also reveal that nurses are prepared to be involved in the provision of spiritual care. However, not all nurses felt that they were able to meet their patients’ spiritual needs satisfactorily. Other researchers have concentrated on the perceptions of service users – for example, Hermann (2001) interviewed dying patients about their understanding of spirituality, while Kearney (1994), and latterly Strang and Strang (2001), discussed issues of spirituality with patients living with neurological disorders such as multiple sclerosis or brain tumours. These investigations demonstrate that some patients may have difficulty in articulating what constitutes spirituality. However, the studies reveal that patients were prepared to talk about their spiritual beliefs, identifying spirituality as an important factor in helping them cope with their illness, or impending death.


Another positive benefit of the research investigating perceptions of spirituality and spiritual care is that some of the studies have led to the development of several scales that assist researchers to measure aspects of the spiritual dimension – for example, the Spiritual Well Being Scale (SWB) (Paloutzain and Ellison 1979), the Spirituality and Spiritual Care Rating Scale (SSCRS) (McSherry 1997; McSherry, Draper and Kendrick 2002), the Spiritual Assessment Inventory (SAI) (Hall and Edwards 2002) and the Spiritual Coping Strategies Scale (SCS) (Baldacchino 2002; Baldacchino and Buhagiar 2003). These instruments have been used successfully in a variety of situations with diverse groups of individuals, and provide valuable insights into how individuals perceive spirituality and how spirituality can be a powerful force in coping with illness and disease.



Activity 7.3


In your experience, do you think that if you asked patients the question ‘Do you have any spiritual needs?’ they would understand what you were asking?



Activity 7.4


Consider the points that have been raised in this book regarding the assessment of spiritual needs. Why do you think health care professionals may have difficulty in undertaking such assessments? And why is it hard to measure health care professionals’ ability to identify patients’ spiritual needs?


Additionally, research that targets the spiritual care practices of specialist practitioners has been undertaken – for example, Taylor, Highfield and Amenta (1994) used a questionnaire to determine what spiritual care practices oncology nurses used in their dealings with patients. Frequent practices identified in this investigation were praying with patients, referring to chaplains, and use of presence as well as listening and talking to patients. Taylor et al. (1994) were concerned with the findings because a question mark was raised about the nurses’ commitment to, or confidence in, providing spiritual care, suggesting that this was not as strong as it could be.


Stranahan (2001) examined the spiritual perceptions and practices among nurse practitioners working in a range of clinical situations; interestingly, the term nurse practitioner was not defined. This is important because the term practitioner can have many meanings, given the proliferation in specialist roles. Like Taylor et al.’s (1994) study, this investigation also established that practitioners felt uncomfortable in performing spiritual care. Stranahan (2001, p.100) writes, ‘More than half (57%) of respondents rarely or never provided spiritual care…’


The findings of all these investigations, if taken literally, imply that, despite all the attention and presumed advancement in this area, health care professionals are still struggling to recognize and engage with the concepts. However, these findings may be explained by the fact that many of the practitioners may have been providing spiritual care but not labelling it as such. The danger with elucidating and defining spiritual care is that this area of practice is fragmented and viewed as something separate to the everyday practices that health care professionals perform (Carroll 2001).


In summary, the empirical literature corroborates and substantiates the conceptual, theoretical and anecdotal evidence surrounding spirituality. It affirms that spirituality is personal, uniquely defined by individuals, and that it is dependent upon one’s own personal philosophy/worldview. The studies demonstrate that spirituality may have relevance to all people, believers and non-believers. Yet, the principle of universality is precarious in the sense that the language and discourses associated with meaning are not always recognizable. For example, many patient groups linked spirituality with religious beliefs. The studies also provide valuable insight into why a group may view spirituality in a particular manner and the forces that influence their understanding – for example, Burkhardt (1991) identified and described how women in Appalachia viewed their spirituality and the societal forces that shaped this understanding, while Cavendish et al. (2000) used grounded theory to clarify the opportunities in life that support or enhance spirituality in well adults living in a region within the US. More recently, Shirahama and Inoue (2001) conducted an ethnographical study to explore the concept of spirituality and its expressions among persons living in a Japanese farming community. These investigations demonstrate that perceptions and understandings of spirituality may be shaped by a variety of social, cultural or regional factors such as religious beliefs, ideologies and historical associations.


While the empirical studies provide a valuable insight into how spirituality may be perceived and defined by specific populations, there was a noticeable lack of comparative studies, comparative in this instance meaning simultaneously contrasting the perceptions of two or more groups of participants – for example, nurses, patients, chaplains, physicians; or studies that have compared the perceptions of the same professional group – for example, nurses working in a variety of specialities such as critical care, palliative care, mental health, learning disabilities. It seems that many of the studies undertaken have targeted a specific group – for example, Narayanasamy, Gates and Swinton (2002) obtained critical incidents from learning disability nurses in an attempt to understand how they meet the spiritual needs of the people for whom they care. This type of research is valuable in that it provides insights into the perceptions and practices of a specific professional group. However, the results cannot be generalized to a wider audience (Carroll 2001).


The empirical literature highlights that a large proportion of the research undertaken focused upon the role of the nurse. In addition, much of the research has been conducted by nurses. However, several studies were identified within the UK that had been conducted by chaplains (O’Driscoll 2002; Wright 2001, 2002). Only four comparative studies were identified that sought the perceptions of more than one group.


Reed (1991) used a questionnaire to explore preferences for spirituality related to nursing interventions with terminally ill and non-terminally ill hospitalised adults, contrasting their views with those of well adults. The findings of this investigation emphasized the need for nurses to be sensitive to the spiritual needs of all patients, not just those with a religious belief. Highfield (1992) investigated the spiritual health of oncology patients by contrasting nurses’ and patients’ perspectives. The study revealed that gender differences may be influential in undertaking an assessment of a patient’s spiritual health, because males were less inclined to talk about spiritual issues. Emblen and Halstead (1993) used a descriptive qualitative design to collect interview data to establish how patients, nurses and chaplains defined spiritual needs and interventions. The findings demonstrate a need for nurses and chaplains to work collaboratively in meeting patients’ spiritual needs.


Most of the comparative studies described have been conducted in the US employed quantitative or qualitative methods, or a combination of both, with the exception of Emblen and Halstead (1993) who used grounded theory. Comparative investigations are important because they shed light on the disparities and commonalities in understanding between participant groups. In addition, they provide researchers with an opportunity to explore possible reasons, explanations and potential solutions. The literature search indicates that no additional comparative studies have been undertaken in the US. The literature search reveals also that none was identified that originated within the UK. This is interesting because Ross (1997, p.714), who identified a need for such research having undertaken a pilot study of elderly patients’ perceptions of their spiritual needs and care, writes:




A study comparing both nurses’ and patients’ interpretations of spiritual needs and care would help clarify what spiritual needs and spiritual care are and would highlight the type of help patients might welcome with their spiritual needs.


It appears that there is an urgent need for comparative studies to investigate the discrepancies that exist between health care professionals’ and patient groups’ perceptions of spirituality and spiritual care. The results of such investigations could be used to inform future policy initiatives and guidelines that surround spiritual care.


The empirical literature verifies that an exclusive language of spirituality may have been created within health care. Several authors stress the need for health care professionals to avoid using and generalizing unfamiliar terminology in their dealings with patients (Hermann 2001; McSherry and Cash 2004; Taylor, Amenta and Highfield 1995). This argument could be extended also to diverse cultural groups. A major limitation of many of the studies reviewed is the lack of cultural and religious diversity. Many of the studies comprised very small samples and, because of the homogenous nature of the subjects in terms of religious belief, professional group and area of residency, these limit the generalizability of the findings.


There is a growing expectation in the empirical literature that the composition of study samples should reflect the ethnic and religious diversity that exists within a pluralistic society. With regards to investigating the spiritual dimension, there is a growing realization by researchers that the insights previously developed may not have meaning for individuals from many of the Eastern religions’ traditions who, it seems, have been underrepresented in earlier research. My interpretation of this situation is that there has not been a conscious attempt to exclude such groups. On the contrary, one plausible explanation may be that the samples used have reflected the majority population working or residing in those areas at the time of conducting the investigation.


Besides, there may well have been difficulties in identifying and recruiting individuals from diverse ethnic groups due to language barriers. Other sociological factors may have been operational also – for example, perceptions of authority, how the information will be used and confidentiality if researchers are from the same ethnic group. Having stated this, there is now a pressing need to ensure that future investigations into spirituality and spiritual care do reflect the ethnic and religious diversity that exists within those regions. By including the perceptions of the minority ethnic, religious groups, a richer insight into the concept of spirituality will be gained.


Enhancement of spiritual care practices


One of the central themes identifiable within the empirical literature is linked to the enhancement of spiritual care practices. As indicated, several of the investigations have focused primarily upon the spiritual care interventions of health care professionals who were primarily nurses. The empirical literature appears judgmental of health care professionals who do not demonstrate a familiarity and fluency with the language of spirituality and the practice of spiritual care (Taylor et al. 1995). Enhancement of spiritual care practices can be explained by two subcategories. First, there are those investigations that


make recommendations to enhance patient care by making inferences – for example, by developing the technical skills and competence of health care professionals, which will lead to improvements in spiritual care. Developing technical skills means nurturing the health care professionals’ own personal awareness of spirituality in conjunction with education to develop skills to address patients’ spiritual needs. Second, there are those studies that attempt to enhance spiritual care practices by offering insight into the experiential world of patients.


Several of the studies reviewed that explored health care professionals’ perceptions of spirituality and spiritual care assume that deficits in relation to the provision of spiritual care may be remedied through education (Harrington 1995; Kuuppelomaki 2001; Taylor et al. 1994, 1995). It is assumed education will remove the discomfort and unease that some health care professionals feel when addressing spiritual needs. However, what is not explored in the educational debates is whether it is ethical to change health care professionals’ perceptions of spirituality. Neither is there any real exploration of the economic or emotional cost of providing spiritual care (Walter 2002). Furthermore, an assumption seems to be made that all health care professionals want to attend, and should be attending to the spiritual needs of service users.


The empirical literature revealed a growing number of investigations that examined the spiritual well-being of specific patient or client groups. These studies focus upon individuals living with acute or chronic illness or diseased systems, such as endocrine, neurological and cardiac systems. This form of specialization is in keeping with the medical and reductionist models that prevail within health care. Clark and Heidenreich (1995) interviewed 63 patients in a critical care unit identifying nursing intervention that may enhance patients’ spiritual well-being. Walton (1997) explored the relationship of spirituality in patients recovering from acute myocardial infarction and patients undergoing heart transplantation (Walton and St Clair 2000). Daalemann, Cobb and Frey (2001) used focus group interviews to elicit understandings of spirituality among female patients with type 2 diabetes and how they viewed its impact upon their health and well-being, while Arnold et al. (2002) used focus groups to establish patients’ attitudes concerning the inclusion of spirituality into addiction treatment. More recently, Baldacchino (2002) (using combined methods) conducted a longitudinal study into the spiritual coping strategies of Maltese patients who had suffered their first acute myocardial infarction. She concludes that maintaining an individual’s spiritual well-being may be a precursor to the relief of anxiety and depression. All these studies demonstrate that spirituality can be a powerful force that enables the patient to endure illness and hospitalization. In addition, these studies may highlight aspects of spiritual care that are unique to these individual groups. However, the fundamental message communicated within these investigations is the central role that health care professionals play in maintaining patients’ spiritual well-being.



Activity 7.5


Do you think spirituality helps patients cope with their illness or condition? Can you think of any cases from your own practice that might confirm the research presented in this section?

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Jun 3, 2017 | Posted by in NURSING | Comments Off on Developments in spirituality: research and education

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