Developing competence for person-centred nursing in the community

14


Developing competence for person-centred nursing in the community




Introduction


This final chapter will help you to consolidate your learning from previous chapters and your experience from practice learning in the community. A scenario is used to describe a situation that is not unusual in the community. It illustrates the impact that the needs and experience of one family member can have on the other members of the family.


However, the scenario also illustrates how the four domains of the NMC competency framework underpin nursing practice:



The NMC competencies and essential skills will be evident in the learning outcomes that you have been working towards throughout your placement. Working through the questions associated with each part of the scenario will enable you to relate your responses to these learning outcomes and may be helpful in developing evidence of learning for your portfolio.



Scenario



Margaret and Harry: Part 1 – Introduction to their life and health


Margaret and Harry have been married for 52 years. Harry was the head teacher at the local high school and Margaret was a part-time librarian. They moved to a modern bungalow to be nearer their daughter Alison when her first baby was born 10 years ago. Margaret and Harry had lots of interests: Harry was passionate about his garden and was a member of the local historical society and Margaret ran a book club and was very involved in helping to look after their grandchildren. Margaret and Harry also have two sons who both live in Australia and they have spent extended holidays there.


Five years ago, Harry was diagnosed with Alzheimer’s disease. Slowly but surely, their lives have changed as Harry’s physical and mental health have deteriorated. It is a while since they have been active in their local community and they have become quite isolated. Harry’s short-term memory is now very poor and he is no longer able to go out on his own. He requires supervision most of the time and guidance with most daily activities such as washing, dressing and shaving. Sometimes he becomes extremely frustrated by this and gets angry with Margaret on whom he relies completely.



Discussions throughout the book have made reference to the experiences of carers. Chapter 5 in particular, looks at the impact that caring can have on physical and psychological health.


Let us say that in Margaret and Harry’s scenario, Margaret wants to care for her husband; she knows he receives the care he wants and needs, and she wants him to be happy at home. So in this respect, the carer’s role brings her pleasure, satisfaction and reassurance. But she is also exhausted, isolated, frustrated and risks developing health problems of her own. In many ways, it is the caring role itself and not what the role involves in terms of the condition or specific needs of the person being cared for that makes the impact. However, caring for someone with dementia has some unique challenges. It is difficult for those on the periphery to fully appreciate the carer’s experience. But an empathetic approach of trying to put oneself in the carers’ shoes is vitally important in order to offer carers the help and support they need and not what the services they think they need.



Activity


Read the following article to gain some insight into how a nursing student supported a person with dementia and their carer in the community: Roy D, Gillespie M (2011) Who cares for the carers? A student’s experience of providing carer support and education. British Journal of Nursing 20(8):484–488.


If you were visiting Margaret and Harry, the following are some of the ways that could help you understand Margaret’s perspective:



Professional values underpin this aspect of nursing practice. The NMC generic standard for competence in Domain 1: Professional Values, includes ‘safe, compassionate, person-centred, evidence-based care that respects dignity and human rights’ (NMC Competencies for entry to the register: NMC 2010: 13).




A day in the life of Margaret and Harry


Margaret describes a typical day in her life which illustrates how caring for Harry affects her health and wellbeing.



Harry’s sleeping pattern is unpredictable. I seem to just dose nowadays. I’m always listening out for him in case he gets up and gets into difficulty. Last night was a good night and he slept right through. At 6 am I make tea and toast and carry it through to our bedroom. This is the start of our daily routine which I try to stick to as far as possible. Harry finds routine helpful but it doesn’t stop him getting confused and upset. Today we had an appointment at the dentist; I explained to Harry that we would drive over for a check-up with Mr Stewart after we had our coffee. I helped Harry to get washed and shaved and I looked out a jacket and shirt and tie for him to wear. Harry became very agitated and angry with me, saying that I was making a fuss. He said that he could go to the dentist as he was (he was wearing his pyjamas). I tried to calm him down and talked about our new grandchild. Alison had baby Amy last week. He didn’t know who I was talking about and said he doesn’t know an Alison. This made me feel so upset; such a happy event in our family and it’s passing him by. I returned to the subject of the dentist and he said I didn’t mention it and why were we going. This was a difficult start to the day and I was already feeling tired and stressed. Eventually Harry was dressed and we had a coffee in the kitchen. When I handed him his coat he looked at me blankly and asked where we were going. This happens so often but I can’t say I’m used to it.


Harry coped well with the visit to the dentist. At home over lunch just for a brief period I saw glimpses of the Harry I once knew. As things appeared to be going well I suggested a walk around the garden which he really enjoys. But he got tired and became confused. He thought he was at his parents’ home and asked to go inside to see his mother. When I tried to explain reality to him he began to cry. We went back indoors and he fell asleep. I sat down and fell asleep too only to waken to hear Harry in the hallway opening the front door – “thank you for having me”, he was calling, “but I need to get home”. Eventually, he settled down and after a cup of tea he fell asleep again. I started to make tea and Alison came over with the children. It is good to have some company and to hear the children’s news about school and their new baby sister. After tea Harry fell asleep again, but I woke him up to watch an old film. We have watched this 20 times or more but he always enjoys it. At bedtime he asked what we were going to do today. I am so tired but this is our daily routine now.



Scenario



Margaret and Harry: Part 2 – Ongoing health needs and decision-making


Harry had become increasingly confused at night and on a number of occasions Margaret had woken up to hear him moving about downstairs. In the early hours one morning Margaret heard Harry calling from the kitchen, sounding distressed. She rushed downstairs to reach him, slipped in the hall and fell awkwardly. When she tried to get up she experienced breathlessness and chest pain. She managed to phone her daughter’s house and her son-in-law John immediately came round. He phoned the emergency services and when they arrived, they decided to take Margaret to hospital. Harry was quite safe and John put him back to bed and stayed with him overnight. Margaret was admitted to hospital and further investigations confirmed a diagnosis of angina.


Although Margaret was discharged the next day, she was advised to rest and it was decided that Harry would stay with John and Alison for a few days. This change in circumstances upset Harry greatly. This resulted in an increase in emotional outbursts and an increase in dependency and episodes of incontinence. John was at home on paternity leave and able to help supervise Harry and get up with him during the night. But he was not happy about this. He felt he should be supporting Alison and spending time with the new baby and the girls during his paternity leave and not looking after his father-in-law. Alison found that she was helping her father with all his personal care and his complex medication regime, which she was not familiar with. Alison tried very hard to maintain the level of care and support for her father that he seemed to need. She had had no idea how much her mother had been doing for him and how demanding this was. On top of her other responsibilities, looking after the new baby Amy and the two girls; she did not know how she would manage when John went back to work if Margaret wasn’t fully recovered and able to take care of Harry. John was convinced that the answer was to admit Harry to residential care. Alison did not agree and this was causing friction in their relationship. At this time, Amy was 2 weeks old, and Veronica the health visitor who is well known to the family visits Amy for the first time.


Feb 19, 2017 | Posted by in NURSING | Comments Off on Developing competence for person-centred nursing in the community

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