© Springer International Publishing AG 2017
Sandra Schüssler and Christa Lohrmann (eds.)Dementia in Nursing Homes10.1007/978-3-319-49832-4_1515. Dementia Care in Nursing Homes Requires a Multidisciplinary Approach
(1)
Department of Health Services Research, School Caphri, Maastricht University, Maastricht, The Netherlands
(2)
Department of Educational Sciences and Psychology, Free University of Brussels (VUB), Ixelles, Belgium
Abstract
Dementia care in nursing homes involves care for very frail and disabled older residents, suffering from complex problems in various domains of life. These problems require an integrated approach, focusing on the resident as a human being with a disease who needs high-quality professional care which contributes to his or her quality of life and also supports the family and other informal caregivers. To enable an integrated approach, multidisciplinary teamwork is necessary. Offering care from a multidisciplinary approach puts challenges on the organization of care, more specifically on the share each healthcare professional gets in the care process, on the related mutual agreements between different healthcare professionals and on their mutual communication. In the near future, more attention must be paid as well to the equal role that residents and family caregivers themselves may play in this process of multidisciplinary care.
Keywords
Nursing homeMultidisciplinary approachMultidisciplinary teamResidentDementia15.1 Introduction
Dementia care in nursing homes represents care for very frail and disabled residents, suffering from complex problems in various domains, including the physical, psychological and social domain. These problems require an integrated approach, not primarily targeting the disease but focusing on the resident as a human being with a disease and also supporting the family and other informal caregivers (Boyd et al. 2005, Schols et al. 2004). Ideally, this approach gets stature through a coherent and coordinated care supply, which is provided by multiple disciplines within a healthcare facility and/or in alignment with disciplines of other healthcare organizations. To enable an integrated approach, multidisciplinary teamwork is necessary. Offering care from a multidisciplinary approach puts challenges on the organization of care, more specifically on the share each healthcare professional gets in the care process, on the related mutual agreements between different healthcare professionals and on their mutual communication. In the eyes of the residents and their family caregivers, integrated care actually is taken for granted (Institute of Medicine 2001). They do find it most normal that healthcare professionals, who are involved in the care of a particular resident, know each other’s activities, so as to ensure that the care will be offered coherently. In short, in their eyes, this should simply be standard care (Huyse et al. 2010). Nevertheless, daily care practice is often still unbendable, and in many cases care provision occurs rather fragmented, both in and outside healthcare institutions.
In this chapter the following issues will be addressed:
The necessity of integrated multidisciplinary care for nursing home residents with dementia.
Theoretical aspects of multidisciplinary care.
The Dutch nursing home as interesting example.
A multidisciplinary approach in fact is relevant for many issues and problems that occur in the nursing home setting and that are discussed in this book. Therefore, this chapter has a more general and descriptive character.
15.2 The Necessity of Integrated Multidisciplinary Care for Residents with Dementia
Nursing home residents with dementia are mostly old to very old persons, who seldom suffer from dementia alone. Often they show a complex geriatric profile consisting of considerable comorbidities, disabilities, handicaps and polypharmacy and also challenging care problems such as malnutrition, falls, pressure ulcers, incontinence, use of restraints and not to forget behavioural problems ranging from apathy towards agitation and/or aggression.
Such a profile is challenging to cope with in the traditional healthcare model which is mainly single disease oriented and based on disease-specific guidelines, coming forward from the strongly promoted evidence-based approach that is based upon the paradigm of the randomized controlled trial. In fact, this approach causes fragmentation of care because it asks for homogeneous patient groups and not for multimorbid heterogeneous ones (Boyd et al. 2005).
Nursing home residents suffering from dementia are already far beyond this single disease status. Their complex polyvalent problems require multifaceted activities of multiple care providers and professionals (Hertogh et al. 1996, von Korff et al. 2009). These activities do start already before their admission to the nursing home and have to be aligned directly with the preferences of the person with dementia and his or her family caregivers who also are involved from the beginning of the dementia process. This complex care process puts demands on the collaboration, communication, coordination and continuity of care inside and outside the nursing home and of course in the transitional phase as well; not to forget the difficult cure – care decisions that often have to be made during their total care trajectory (Goodman et al. 2016).
Residents with dementia therefore represent complex patients. Offering tailored care to them in both the home situation and the nursing home, during their total ‘patient journey’, has become increasingly difficult during the years, as healthcare systems of many countries have become rather fragmented and highly differentiated. These difficulties are also experienced by the family caregivers and professional caregivers.
In the Nursing Home
Nursing home residents with dementia are quite old and very care dependent, and they often show complex behavioural problems as well. The challenge is to offer these residents adequately integrated nursing, treatment and welfare services in the nursing home environment, in such a way that these services contribute to their well-being and quality of life, by also taking into account their former lifestyle and supporting family connections.
In most countries, nursing home care is basically offered by employed nurses and welfare workers and additionally by regularly or on demand visiting physicians (mostly general practitioners) and paramedical professionals, including physiotherapists, occupational therapists, speech therapists and dieticians. In some countries, including the Netherlands, physicians and paramedical professionals are employed by the nursing home organization itself (Schols et al. 2004). In nursing homes of most Western countries, it is nowadays rather standard to make an integrated care plan for (= together with) every resident and his or her primary family caregivers. This care plan is made after assessing the relevant biopsychosocial factors of the resident and consists of tailored nursing, treatment and welfare activities that have to be executed in a collaborative, multidisciplinary model by different disciplines, of which the outcome and follow-up are monitored regularly (Smith and Clarke 2006). The quality of care related to this institutional care model is not only dependent on the quality of the individual professionals but also on both the effectiveness and embedding of the ‘multidisciplinary care model’ itself. Effectiveness refers to adequate planning of the care and welfare processes and the way these processes are supported by adequate communication and shared decision-making within the team and with the resident and his or her family. Effectiveness also refers to the overall governance of the care processes. Embedding means that the care model must be embedded in an appropriate living environment. Nowadays, most nursing homes want to offer their residents with dementia a rather homelike environment to live in, to enable the residents to live their lives as much as they were used to (Huyse et al. 2010).
15.3 Theoretical Aspects of Multidisciplinary Care
This section describes some relevant theoretical aspects of multidisciplinary care provision without aiming to be complete.
Multidisciplinary collaboration is not a new phenomenon in healthcare. In various settings, including nursing homes, collaboration between, for instance, physicians and nurses exists already for a very long time. However, in the past this collaboration was mainly based on hierarchy and differences in power (Fewster-Thuent and Velsor-Friedrich 2008). Throughout the years, one has been looking for new, more egalitarian forms of multidisciplinary collaboration. In these efforts, the main problems of multidisciplinary collaboration involve problems in the relation between disciplines (and persons!), the preservation of professional autonomy and the relation with the own professional background, the different discipline-related languages and jargons and also the issue of team leadership. Moreover, in larger healthcare organizations, different multidisciplinary teams within an organization may sometimes develop towards too autonomous functioning and getting ‘lost’ from the total organization. What remains, however, is the consensus that a multidisciplinary approach is to prefer above a monodisciplinary one for residents with complex problems, meaning problems that show a component complexity, a coordinative complexity and an ambiguity (Stoffels 2008, Jonge et al. 2006, Huyse et al. 2006). Component complexity means that more than one medical or nursing or psychosocial domain is involved. Coordinative complexity involves that there is also a dynamic interaction between these domains and that intervention on one domain can interfere with problems in other domains. Ambiguity (for instance, in ethical dilemmas) means that insufficient or inconsistent evidence-based information is available and that consensus and therefore adequate and rather intense communication are needed to achieve the best possible solution for daily practice. Offering tailored care to residents with such complex problems ultimately is the main goal and common interest of a collaborative approach, which has to lead to a win-win situation for the residents and the professionals (Firth-Gozens 1998).
15.3.1 The Process of Collaboration
Teamwork in healthcare is more difficult to manage than in commercial environments because every team member has its own professional background with historically included ideas about professional autonomy and responsibility (Firth-Gozens 2001). Despite this, some central norms have been described in literature for the allocation of responsibilities in hospitals, which also may apply for nursing homes (Mitchell et al. 2008, Xyrichis and Lowton 2008, Opie 1997):
For a resident and his or her family, it must be clear who is the contact point for questions about the care and treatment.
It must be clear who is responsible for monitoring the total care trajectory of the resident.
All care professionals involved must make appointments about their separate but complementary tasks and responsibilities in the care for the resident.
All necessary resident data must be available in a paper or digital record that can be accessed by the professionals involved.
If the complexity of the resident’s problems increases, additional appointments have to be made, based on relevant risk analyses.
In addition, the process of collaboration itself indeed has consequences for professional autonomy. Professional responsibility is closely linked to expression and feelings of professional autonomy (Opie 1997). Whether a change in professional autonomy will be experienced as a problem depends also on the personality traits of the professional involved. Moreover, personality traits as such may influence the process of teamwork. For instance, introvert persons may feel barriers to collaborate in a team with many extrovert persons. Diversity within a team can be threatening; many people like to work in a team with people that match more to their own character and style. Gender and culture differences may also play a role in the way multidisciplinary care can be executed successfully.
Anyhow, good multidisciplinary teamwork requires a transparent decision process, and the ability of all team members to self-reflect on their professional behaviour and to undergo mutual feedback forms a positive attitude.
From the perspective of nurses, data are available about collaboration in healthcare as well. The traditional, hierarchically oriented, relationship between physicians and nurses always has offered less space for an equal work relationship. Next to this already mentioned phenomenon, nurses often express both lack of time and lack of clarity about the role of doctors versus nurses in the care for the residents. In addition, this lack of clarity is also difficult for the residents and their family themselves. Despite this, more recently a trend has become visible in which higher educated nurses and nurse practitioners more often get a coordinating role in multidisciplinary collaborative care models (Fewster-Thuent and Velsor-Friedrich 2008).
15.3.2 Collaborative Competences in Daily Practice and Education
Success of multidisciplinary teamwork does not only depend on the main goal related to optimizing integrated care for the residents and on the common interests of the team members themselves; it also will benefit from goals that have been set for the collaboration process itself.
It is important to realize that ‘collaboration’ can be learned and therefore educational institutes, schools and universities in fact have a role in this. Multidisciplinary care provision should get more attention in the regular medical and nursing studies and might be facilitated also by using innovative educational activities taking place across the borders of different disciplines.
Collaboration is one of the competence domains of the CanMEDS model which mentions the following characteristics of a well-functioning collaborative model (The Royal College of Physicians and Surgeons of Canada 2005):
Building up an efficient and effective multidisciplinary team.
Working together effectively with patients, family caregivers and other professionals in society and healthcare.
Providing tailored information, leadership, consultative activities and participating in multidisciplinary team meetings.
If motivated and open for self-reflection, professionals can learn how to work in a multidisciplinary way. This starts with the overall awareness of the importance of adequate multidisciplinary collaboration. Next to this, knowledge of the roles of different team members and of various models of multidisciplinary collaboration is important.
The following skills can be learned and practised (Boenink et al. 2010):
Negotiating, expression of professional leadership and being accountable for one’s own activities.
(Shared) decision-making and conflict management.
Allocating of tasks and responsibilities and testing the subsequent effects.Stay updated, free articles. Join our Telegram channel
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