Chapter 5 Community development as a public health function
Introduction
It is generally agreed that poor health and poverty are inextricably linked and that ill health will not be solved by medicine alone, but by more effective public health measures and socio-economic change. Access to a sustainable income, an equitable and accessible food supply, tackling crime, responding differently to mental health issues, housing and environmental needs and the building of social capacity are some of the issues which, it is suggested, if addressed would have a long-term impact on community health. That poverty is the key indicator in poor health is now indisputable (Marmot & Wilkinson 1999, The Black Report, Townsend & Davidson 1982), but the historical relationship between the NHS and medical/clinical model of health has arguably compounded the problem of inequality in health. Until recently the sole focus of the NHS has been primarily on treatment and disease and, although these are undeniably important, there has been a tendency to view health as only treatment and cure. The preventive aspect and the impact of poverty on health have traditionally been believed to have been outside the scope of medicine, and health promotion/improvement, when it occurred, has been regarded mainly as relating to individual behaviour change based on an information giving process.
The NHS value system has encouraged ways of working to address health needs that are, arguably, more comfortable culturally for higher socio-economic groups. Little or no focus has been placed on how the people with the poorest health might perceive a system that seems to ignore their needs. People struggling with stress and financial difficulties, or who feel themselves outwith societal norms, need different, more creative ways of allowing their legitimate voice in the decisionmaking process. Much of the profound inequity in peoples’ health is socially determined and arises from the circumstances in which people live and work. Poverty is more than low income, a lack of education and poor health. It is also an experience of feeling powerless to influence the social and economic factors that determine wellbeing. Poor health exacerbates existing poverty and poverty is most often a political problem, i.e. people are poor because of structural, man-made situations.
Community development: origins and influences
Although community development is now gaining recognition as an approach to health, the methods and thinking that constitute community development are not new. Jones (1990) suggests that it was used by colonial governments to ‘ensure the governability and modernisation of their empires’ (p. 32). It was more recent events, however, that nurtured its growth and its value as an approach to addressing health issues.
According to Jones (1990), community development and health work had evolved over the previous 10 years, incorporating a number of different influences that had built onto a basic community development model. The growing movement in health occurring in the last few decades has used community development as an ideological and practical framework to bring about change in how health as a concept is regarded. Previously used as a method in community work to address housing and social policy needs, the first health projects using community development principles did not appear in the UK until the late 1970s. The emergence, in the late 1960s and 1970s, of social movements like the women’s movement, civil rights, black power and the self-help movement, was a key influence in supporting the growth of the approach.
A social movement is defined as: ‘collectively acting with some continuity to promote change in the society or group to which it is a part’ (Turner & Killian, quoted in Schiller & Levin 1983, p. 1344). The social movements of this time grew from the disaffection of people who felt marginal to and excluded from decision-making processes. It was a reaction to the dominant male, white, middle-class systems and the attitudes that discriminated against women, black people and the poor. The movements demanded justice, freedom, democracy and the end of discrimination. Underpinning their emergence was a belief system that held the primacy of individual experience as the basis of knowledge and expertise.
The Black Report (Townsend & Davidson 1982) indicated that the groups for whom the social movements had, potentially, the greatest impact, that is, those who are socially and economically disadvantaged, who are more likely to experience poorer health and have shorter lives than more affluent people. The community development ethos will bring into the awareness of public health workers that these groups of people, and others who feel socially excluded from mainstream society, e.g. homeless, disabled, have knowledge and experience about their own lives that, when harnessed, can strengthen and sustain their communities.
The right of people to participate in health decisions is enshrined in the Alma Ata Declaration of 1977 (World Health Organization (WHO) 1978). It states that ‘the people have a right and a duty to participate individually and collectively in the planning and implementation of their care’. The desire for a public health movement to tackle health problems resulted, in 1981, in the WHO policy Health For All by the year 2000. Central to the attainment of its targets is the development of primary care and the concepts of participation, collaboration and equity that were central to the Alma Ata Declaration.
The dominance of the medical model in public health thinking, and its focus on epidemiology and medicine, has left an ontological deficit in what health workers working in public health know about the poorest communities; what they need to promote health and to build the social capacity of their neighbourhoods and communities. Involvement in public health work, through activities like communitybased needs assessment, public involvement in primary care planning and delivery of services, would legitimate the community development approach and support the move away from the clinical model based on individual, transactions to a social contract with entire communities (Ashton & Seymour 1988). To fit the new agenda of addressing social, as well as individual, change in health, health workers require a change in their approach to health as a concept, and to the methods and the activities of its daily practice.
Elements of community development
Empowerment
This is also discussed at length in Chapter 6. Rappaport defines empowerment as ‘the process by which people, organisations and communities gain mastery over their lives’ (1984, p. 3). The empowerment process involves building individual and collective confidence and raising the esteem of individuals and communities through valuing their knowledge and experience and supporting them to be part of the decision-making process. Kiefer (1983) views empowerment as attainment of what he calls ‘participatory competence’. Beigal (1984) views empowerment as both capacity and equity: capacity being use of power to solve problems and equity referring to getting one’s fair share of resources. Empowerment skills include problem-solving, assertiveness and confidence-building strategies.
Participation
The concept of participation is about supporting people who are affected by decisions, to have some influence over their outcome, and for nurses it is an important approach to the attainment of health. Perceptions of power affect participation. Steve Lukes (1974) suggests that there are different levels of power: the visible manifestations of power, the unseen but tangible manifestations of power and internalised powerlessness. People on the margins of society experiencing this third level of powerlessness become passive and dependent. Believing themselves unable to influence events and decisions affecting their lives, they consciously exclude themselves from opportunities to be part of the process of decision making. People who experience internal powerlessness are often those who do not attend for clinic appointments, come to parentcraft classes or attend their children’s school evenings. They don’t believe their involvement can make a difference to their lives.
Keifer suggests that participatory competence is a life-long achievement and includes three aspects:
Consultation, rather than participation, happens when decisions have already been made and there is little likelihood of any change but the public is still asked to comment about a proposal. This is a poor substitute for real participation and being part of the planning process. There are six different levels of participation or involvement from information giving to user control (Box 5.1).
Box 5.1
Levels of participation or involvement
(Adapted from Taylor et al 1988)
Partnership and alliances
A key concept in the community development process is partnership and the building of alliances. Alliance is defined as partnership for action; a virtual organisation that is created by the interaction between partner agencies and sectors (Duffy 1996). The purpose of agencies working together and with local people is to develop common priorities and strategies on issues and policies that affect health. Partnerships for health work involve a wider spectrum than that usually associated with the health sector. For example, a health alliance would involve nurses working in partnership with agencies such as environmental health, education, social work, voluntary organisations, health projects, work places and local industries. Funnell et al (1995) identify six key features of alliance building (Box 5.2).
Box 5.2
Features of alliance building
(From Funnell et al 1995)
Collective action
The author’s and other experienced community development workers’ experiences suggest that the knowledge of what constitutes community development in primary care is very incomplete. Many health visitors maintain that they have been working in community development for years and need learn nothing new. They believe that running groups, giving input into a women’s group or working with mother and toddler groups is community development. Small-group work is an important method in community development and is to be encouraged but it is not the whole story. What is missing from primary care is the action part of community development. Concepts like partnership or equity are very palatable, empowerment is what many feel they are doing already, but collective action is more frightening because it is about the transfer of power and control. When health workers talk about doing community development what they more rightly mean is that they are working with a community-based approach.
The difference between community development and community-based work is not well understood and the use of the term ‘community development’ to describe what is essentially community based can lead to confusion. Essentially the differences are quite profound and adoption of one set of activities without the right mindset will lead to different outcomes. There is nothing wrong with community-based work and many argue that it will eventually lead to community development (Labonte 1998). However, the author’s experience is that it can be difficult to shift from initial dependency into shared authority and if that is the final aim then why not start off that way? The use of community based rather than community development denotes a failure to let go of power (Table 5.1).
Community-based work | Community-development work |
---|---|
Professional control – health worker manages budget, finds funding, controls use of venue, opens up and closes building, etc. Worker sets and manages the agenda | User/community control – shared authority between users and workers, e.g. management committee where members have equal rights |
Professional knowledge and experience used and valued | |
Focus of the group is to impart knowledge. | Members set the agenda |
Group facilitated by professional | Local and individual knowledge and experience valued as much as professional knowledge |
Invited speaker gives a talk from professional perspective and invites questions | |
Often professional venue/location, e.g. health centre | Usually community location, e.g. village hall, health project |
It can be seen from this matrix that the level of involvement of the participants in community-based activity is on the passive dependent continuum, whereas when a community development approach is used the user involvement is at a more active involving level. When challenged about where the power lies in a community-based activity, many workers will say that the users decide what the agenda or programme is so that makes it community development. However, if the knowledge imparted comes from a professional perspective and is located within a professional context with professional boundaries, there is a chance that, in terms of cultural competence, the information may not relate to the lives of individuals living in different social, cultural or financial circumstances. More empowering is for one of the group to seek out the information on behalf of the rest of the group. For example, if a group member collects information about healthy eating or parenting and then shares this knowledge with others, it is not only more empowering for members, but more likely that the information is better understood, given that it relates to the cultural context of the members. It will then have more impact. The worker’s role is one of facilitating a different kind of process.