CHAPTER 6. Nursing care and nurse caring
issues, concerns, debates
Debra Jackson and Sally Borbasi
LEARNING OBJECTIVES
• introduce caring as a professional concept that is entwined with understandings about nurses and nursing
• explore caring as a theoretical concept
• discuss perceptions of nurse caring from the perspective of patients/clients
• provide an overview of issues related to care and cure
• critique caring as the basis of the discipline of nursing, and
• contemplate threats to nurse caring.
NURSING AND CARING
The concept of caring is intertwined with nursing—some literature even states that caring and nursing are synonymous (Hayes, and Wilkin,)—and has been identified as central to the theory and practice of nurses. For many years, nurse theorists have developed theories of nursing in which caring is positioned as a major foundational element (Leininger, 1984 and Leininger, 1986, Watson, 1985 and Watson and Jackson, 2005). Efforts to theorise caring, and understand it as a concept that is able to be compatible with, and integral to, the practice of nursing, have occupied a lot of energy in nursing for a number of years, and continue to attract the attention of nurse scholars from all over the world (e.g. Finfgeld-Connett, 2008 and Sumner, 2008). The close relationship of nursing and caring is able to be seen in the many definitions and perspectives of nursing that position caring as inherent and central to the nursing role (e.g. Benner, 1984, Leininger, 1984, Sumner, 2008, Swanson, 1993, Watson, 1988 and Watson and Jackson, 2005).
Initially, the concept of caring may appear to be simple and uncomplicated, and indeed, general dictionary definitions of caring define it in simple terms. It is a generic word and one that is widely used in the general lexicon—meaning that it is not ‘owned’ specifically by nursing and nor does it apply only to nurses and nursing. However, when used in relation to nursing, the concept of care cannot be oversimplified. Terms such as nursing care and nurse caring carry certain meanings and understandings. In these contexts, care is a complex, multidimensional concept that is positioned as the characteristic that distinguishes nursing, and sets it apart from other health-related activities (Jackson & Borbasi 2000). Although a caring perspective is not unique to nursing, it is widely accepted that nursing has an essential role to care for the health of individuals, families and communities, and many believe the care given by nurses has the potential to restore health (Benner and Hooper-Kyriakidis, 1999 and Watson,).
In this chapter we introduce caring as a professional concept, and acquaint you with some of the major arguments and viewpoints associated with caring in general and nurse caring in particular. In writing this chapter we have drawn on a substantial body of international literature that reflects some of the major perspectives of nurse caring that have been published over the past 20–30 years. It is necessary to cover literature over this long period in order to develop an appreciation of the longitudinal and international nature of the debates and discussions around caring. Furthermore, you will see that many of the issues remain unresolved, and that this is one debate that will continue into (and likely even beyond) your own nursing careers.
CARING AS A THEORETICAL CONCEPT
The complexity around such a seemingly uncomplicated and simple concept such as caring can be seen when one considers the plethora of literature devoted to it. Even a cursory database search on caring will generate copious literature on the subject. Try it! Upon examining this literature you will also see that this is a discussion that has spanned generations of scholars and that each generation builds on the work of previous scholars. You will also see it reveals a multitude of definitions, and various positions on the ways that caring can be conceptualised. Several theories of nursing have been developed from the standpoint of defining and describing caring practices. Leininger (1986) believes caring is the essence of nursing, but dismisses the idea of nurses’ care motivated by a sense of duty. Rather, she considers caring as learned because it is an integral part of cultural life. However, factors within various cultures (e.g. gender) may either curtail or facilitate the use of care knowledge by nurses.
Watson (1988), another well-known luminary on the subject, writes of a science (and practice) of caring, and conceptualises caring as the ethical and moral ideal of nursing. In 1990, Rawnsley noted that caring:
… has been proposed to be a philosophy and science, an ethic, an interactive set of client expectations and nursing behaviours, expert nursing practice, the hidden work of nursing and a synonym for nursing itself (Rawnsley 1990:42).
If we look at feminist and nurse Falk Rafael’s (1996:3–17) work, she suggested caring could be considered either ‘ordered caring’, ‘assimilated caring’ or ‘empowered caring’ (p 4). Ordered caring she proposed as problematic for nurses because it is about merely following orders; ‘it allows only a severely limited scope of caring, one that is devoid of knowledge, power or ethics’ (Falk Rafael 1996:11). To illustrate this point, she draws on the example of the kindness and gentleness shown by nurses towards psychiatric patients as they were led towards the Nazi gas chambers. Assimilated caring was described as a form of caring in which the feminine construct of caring is grounded in (male) scientific discourses. This appropriation of a male construct is proposed as giving legitimacy to the essentially female activity of caring. Falk Rafael positioned empowered caring as the most desirable and effective form of caring. This form of caring, she asserted, was grounded within a feminist perspective, and involves the use of power, knowledge and ethics. Falk Rafael (1996) proposes the acronym of CARE (credentials, association, research, expertise) to encapsulate the elements of this empowered caring.
REFLECTION
Do you think the work that Falk Rafael published in 1996 about caring is still relevant today?
Another theorist you may have found through your literature searching proposed holistic caring as a form of nurse caring (Williams 1997). Williams regards this as a global concept with four dimensions that she names physical caring, interpretive caring, spiritual caring and sensitive caring. No doubt known to you, holism is a concept crucial to the effective practice of nursing, and is a term used to describe the nurse’s belief that a ‘patient is a person with social, physical, mental, and spiritual components’ (Williams 1997:61–62). Holism is positioned as central to notions of professional caring, and is so intrinsic to this, it is often taken for granted—viewed as a ‘given’, and therefore often not described or examined in discussions on professional caring. The use of a holistic perspective is said to facilitate an ethos that recognises the uniqueness and value inherent in individuals, and allows for the provision of individualised nursing care. More recently, a theory of ‘nursing as caring’ has been offered by Boykin and Schoenhofer (2001) who consider human beings as a species to be innately caring, and that reaching one’s full potential in terms of caring is a lifelong process.
Through the literature, there is general agreement about the difficulties associated with defining and positioning caring (Bassett, 2002, Paley, 2001 and Sumner, 2008). What is more, it has even been suggested that the task of rescuing the concept of caring from its elusivity is impossible, a situation Paley (2001) attributes to problematic suppositions about the nature of knowledge. Nevertheless, even accounting for the difficulties associated with defining caring, the importance of exploring how nurses have theorised and attempted to understand the elusive nature of a concept so central to their practice cannot be underestimated.
Let’s look at more of the literature. Many nurses consider caring as being primarily a relationship between nurse and others in which experiences are shared. Consider Pearson (1991:199), for example; he describes the broad, global human concept of caring as ‘investing oneself in the experience of another sufficiently enough to become a participant in that person’s experience’. Sullivan and Deane (1994) assert that nurse caring prizes human relationships, and is informed by principles of sharing, sincerity, concern and moderation. Wolf et al (1994:107) propose that nurse caring has several tangible dimensions, including ‘respectful deference to others, assurance of human presence, positive connectedness, professional knowledge and skill, and attentiveness to the other’s experience’.
In addition, caring is understood to have intellectual as well as emotional aspects (Kapborg & Bertero 2003), and in 1992 Pepin suggested two dimensions of caring: love and labour. Love is said to consist of affective (i.e. pertaining to feelings) concepts such as altruism, compassion, emotion, presence, connectedness, nurturance and comfort, and it is this aspect of caring that has dominated the nursing literature (Pepin 1992). Labour refers to the element of care related to toil and service, and encompasses roles, functions, knowledge and tasks. Though Pepin (1992) suggested that this latter dimension of caring has received much less attention in the nursing literature, a number of these issues are discussed in some depth in nursing discourses on topics such as competency and clinical expertise (e.g. Hardy et al 2002). When considering the concepts of emotion and labour it would be remiss not to mention the concept of ‘emotional labour’. This term emanated from sociology and pertains to workers who are required to display emotions that are in keeping with organisational requirements, rather than how the person—the individual nurse—truly feels (Staden, 1998 and Mann,). Research has shown this to be an under-appreciated and stressful aspect of nurses’ caring work (Henderson, 2001 and Mann,).
REFLECTION
Do you think these theories are relevant in today’s world? If yes, why? If no, why not?
EXPERIENCING NURSE CARING: WHAT DO PATIENTS SAY?
Upholding the theory that caring is a concept central to the practice of nurses is not only important for the profession, but is also highly significant for the recipients of that care. It makes sense that if nurses are to claim they are caring professionals, they are obliged to find out what nurse caring means to patients, and how nurses can demonstrate care for patients. Somewhat ironically it has been the more recent rise of quality improvement processes that has spearheaded the interest in patients’ views about the care they receive in healthcare settings, and this movement has not been led by nurses, but economists. Another determinant of mounting interest in patients’ satisfaction with care is the fact that patients are no longer ill informed, passive recipients of health services, but increasingly informed and active consumers who expect a certain standard of care and are not afraid to litigate should their expectations not be met.
REFLECTION
• Have you ever been a recipient of a health service?
• What approach/es do you take if the ‘care’ you receive falls short of your expectations?
• What are your expectations of ‘care’?
• Are you able to articulate them?
• If you have experienced being a patient, would you say that your perceptions of what constitutes caring were different from those you hold when you practise as a nurse or nursing student?
If we continue our literature searching, it can be seen that patients’ views of professional caring may be very different from those proposed by nurses. Nurses often (but not always) embrace psychosocial models of caring, while studies of patients often (but not always) suggest that patients value caring that is more technical or task-orientated in nature. For example, one study exploring the caring behaviours of hospital nurses from patients’ perspectives found physical caring behaviours such as ‘monitoring’ were ranked much higher than aspects of caring such as ‘trusting relationships’, which could be considered to be affective or psychosocial in nature (Greenhalgh et al 1998; similarly Webb 1996). Indeed in 1996, Webb cautioned nurses against placing too much emphasis on the psychological elements of care, at the expense of physical or technical aspects of care. In light of burgeoning technological intervention, this advice appears sound. Yet, the difference in perceptions of caring between nurses and patients warrants consideration.
In Western industrialised societies, technological skills and expertise are viewed as high status, and the domain of ‘professionals’. In times of vulnerability, such as when people are ill, people like to feel assured they are in the care of competent health professionals, and perhaps view technological proficiency as evidence of such competence and expertise. The interpersonal aspects of caring so highly idealised by nurses may be viewed by patients as ‘non-professional’ caring—the type of caring available to them within their own social worlds, and not something they necessarily seek within a context of professional caring.
Other factors may also play a part in how patients experience or view nurse caring. For example, a Norwegian study demonstrated a gender-related difference in satisfaction with the quality of nursing care between young female patients when compared to young male patients (Foss 2002). In this study, the young female patients perceived nurses to be less committed and caring, to have less time and to be less skilled than did the male patients.
Similarly, a Jordanian study (Ahmad & Alasad 2004) that surveyed patients for their opinions of nursing care discovered that male patients tended to have a more positive experience of nursing care than their female counterparts. The most important predictors for satisfaction with care in Ahmad and Alasad’s study, however, related to the nurse’s ability to meet the patient’s information needs, the amount of information provided and the time nurses spent with patients. Demonstrating respect and courtesy towards family and friends was considered another major predictor. Patients appreciated those nurses who ‘told them what to expect in the next shift, took interest in them as persons, provided them with privacy and perceived them as friends’. The authors concluded that the best aspects of nursing care are a ‘happy atmosphere, patients’ privacy and individualised care’ (Ahmad & Alasad 2004:239).
REFLECTION
• What are your views on the findings by Ahmad and Alasad (2004)?
• Would you tend to agree/disagree with them?
In Sweden a study was conducted into patient satisfaction with nursing care at night (Oleni et al 2004). A number of nurses and patients were surveyed for their opinions. The study found a significant difference between nurses’ and patients’ assessments of patient care requirements in terms of nursing intervention. The nurses’ assessments of nursing care were more positive than patients’ perceptions. Patients scored lower for the concepts of information and participation, observation and monitoring, and night rest. Again this study demonstrated the importance patients attach to nurses providing them with appropriate and adequate information in order to better place the patient to influence and take responsibility for the care they receive. Patients were less positive about nursing observation and monitoring, and almost a quarter of them were dissatisfied with their ability to rest at night.
If we look at the findings from a review of predominantly quantitative observational studies related to patient satisfaction with the care provided by nurses, patient satisfaction was revealed as contingent on a number of factors (Johansson et al 2002). These included technological competence, as well as being responsive, kind, attentive, calm and encouraging. Insufficient information was shown to be ‘perhaps the most common cause of dissatisfaction’ (Johansson et al 2002).
Even as we write this chapter the world of healthcare is changing and the way patient care is organised and delivered is undergoing constant reformation. Because it is a commodity limited in resources yet high in demand, the healthcare arena and all who service it are under duress to do more with less. Nurses everywhere are experiencing heavy workloads, long hours and increasingly complex professional demands. This is not a context conducive to the provision of personalised care and considered information giving.
Yet in the world of healthcare today it would appear the pendulum is returning to nursing interventions based on feeling as being more important for patient satisfaction than medical–technical interventions (Johansson et al 2002). As a recent study of patient experience revealed, it is the ability of nurses being able to show that the patient is an important person and that nurses really care about them that epitomises the best nurse caring behaviours (Mok & Pui Chi Chiu 2004:482).
Caring behaviour considered paramount to patient and family includes the creation of a natural and constructive relationship between nurse and patient—indeed, the capacity to ‘feel kinship’ with the patient is attributed to the best nurses and the value of physical contact, especially if it has a comforting effect, should never be underestimated (Johansson et al 2002). Hayes and Tyler-Ball (2007) undertook a study of trauma patients’ perceptions of nurse caring, and found that the patients found it difficult to separate their care experiences into care received in different areas of the hospital. Rather, patients formed a picture or view of the hospitalisation experience, and this meant that overall perceptions of very good care would be compromised by a single negative episode of care.
Alongside moves to patient-centred care has been a concomitant effort to involve the family in care. Family-centred nursing has become an important foci for nurses’ research and has a well-formulated philosophy and standards. In Australia, its proponents are working hard to implement some of its central tenets, although there is resistance in some quarters. The Insititute for Family Centred Care in North America has a well developed website promoting its cause (see www.familycenteredcare.org/faq.html).
To conclude this section we would like to use the words of one of Australia’s eminent leaders in nursing, Professor Judy Lumby, who at the beginning of this century stated: ‘ultimately it is the patient who must judge whether we care’ (Lumby 2001:144). In a technologised world that values profit over people, it is hard to imagine that a nurse who exhibits caring behaviour could fail to make a difference.
CARE AND CURE
As you are no doubt aware, in a relatively short space of time, rapid developments in medical science, nursing knowledge and related health technologies have acted to dramatically improve patient outcomes and prolong life. We are now told that the human genome project and similar advances in science will lead to predicted increases in human life expectancy by as much as 25 years, and living into our hundreds will become commonplace (BBC World Service 2000).
In most parts of the world, these same technologies have radically and permanently changed the face of healthcare, and this has been the catalyst for a discussion in nursing and health that has become known as the ‘care/cure’ debate (e.g. Baumann et al., 1040, Graham, 2008 and Webb, 1996). This is a debate that has raged for quite a number of years. Johnston and Cooper (1997) suggest that the healthcare system in the United States was designed to cure illness and disease, rather than care for people and their health. This is the case for many Western healthcare systems, and provides a challenge for those whose main imperative is to care.
Clearly, caring alone will not meet all the health needs patients have but, as Webb (1996) pointed out, curing strategies may be insufficient unless accompanied by a caring dimension. In recent times a number of nursing scholars have published work on the concept of nursing as a therapeutic activity in its own right and the need for effective therapeutic relationships if the patient is to be ‘cured’ (Ersser, 1997, Freshwater, 2002, Johns, 2001 and Ramjan, 2004). Williams (1997) too has suggested caring is, in itself, essential to cure. She proposes that caring nurse behaviours have been demonstrated to have positive effects in terms of patients’ wellness and, conversely, non-caring behaviours by nurses have been shown to negatively affect patient wellbeing and recovery.