Informatics in Public Health Nursing
Marisa L. Wilson
Martha Kelly
Sandra B. Lewenson
Marie Truglio-Londrigan
How impossible to portray with any justice to the subject the superb panorama of the progress of human betterment under the leadership of science through successive generations of ardent devotees blazing ever new trails, evolving ever new methods, achieving ever more outstanding results, facing ever new problems … (Goodrich, 1931, p. 1385).
LEARNING OBJECTIVES
At the completion of this chapter, the reader will be able to
Define the terms used in Public Health Informatics.
Describe the application of information technology in public health nursing practice.
Discuss the use of nursing informatics in public health nursing.
KEY TERMS
Data
Database
Data mining
Electronic Health Records
Informatics
Information
Information technology
Knowledge
Nursing informatics
Personal Health Records
Public health informatics
Regional Health Information Exchange
Surveillance
Public Health Informatics is the application of information science and technology to public health practice and research in order to:
Assess and monitor the health communities and populations at risk,
Identify health problems and priorities,
Formulate policy,
Assure all populations have access to appropriate care, and
Evaluate the effectiveness of that care. (Medterms Medical Dictionary, 2007).
The capacity to quickly gather data, to generate information from that data, and to build knowledge from the information is fundamental to all nursing, community health, and public health activities. Information management and communication are key parts of the infrastructure on which the public health system is built. Historically, public health information systems have been built using a “silo” approach—different information systems for different programs that cannot communicate with each other. The challenge for public health activities is to build integrated information systems that get the right information to the right people when they need it.
Utilizing information technology is essential to public health and, specifically, to public health nursing. Information systems, which help us to gather, manipulate, store, and process data, are an essential tool in the public health arena where accurate and up-to-date information is needed as real-time as possible. Historically, data collection has always been one of the hall-marks of public health. Florence Nightingale spoke to the need for accurate statistics about morbidity and mortality, using pie graphs and the like to demonstrate the necessity of quality nursing care (Agnew, 1958). Ozbolt and Saba (2008) recognized Nightingale’s quest for this kind of data, saying, “Nightingale called for standardized clinical records that could be analyzed to assess and improve care processes and patient outcomes. Nursing informatics thus springs from the roots of modern nursing” (p. 199). Lillian Wald, the noted public health nursing pioneer and founder of Henry Street, compared and contrasted the data collected by the visiting nurses from the Henry Street Nurses Settlement with data from four New York City hospitals. Using these data, Wald (1915) showed that care provided in the home improved patient outcomes. Nightingale and Wald valued statistical data. They collected and analyzed the data from their clinical experiences, all without the use of and speed that information technology and other forms of technology can now provide public health nurses.
This chapter highlights the use of technology as a competency that must be achieved by all practitioners (U.S. Department of Health and Human Services {DHHS}, 2004). Like all nursing professionals, public health nurses need to have a basic understanding of technology and how to put that technology to use. Skiba (2008) wrote that “informatics tools can help mitigate error, provide interdisciplinary communication, promote quality, support clinical decision making, and provide the necessary infrastructure for evidenced-based practice” (p. 301). Although not specifically focused on public health nursing curricular activities, Skiba supports the case that students need to understand and use informatics in all healthcare settings. Skiba echoes the American Nurses Association (ANA, 2008) statement that “the evolving mandate for electronic information systems and increasing complexity of health care services and practice have raised the bar for the nursing professional. Select informatics competencies will soon be required in all undergraduate and graduate nursing curricula” (p. 17). Public health nurses must know how to use computers and information
technology, as well as incorporate newer online learning technology (U.S. DHHS, 2004) into their practice. Public health nurses need to understand the importance of the Electronic Health Record (EHR), the Personal Health Record (PHR), Health Information Exchanges (HIE), and how these technologies contribute to the ability of public health nurses to assess, monitor, plan and evaluate programs for populations at need.
technology, as well as incorporate newer online learning technology (U.S. DHHS, 2004) into their practice. Public health nurses need to understand the importance of the Electronic Health Record (EHR), the Personal Health Record (PHR), Health Information Exchanges (HIE), and how these technologies contribute to the ability of public health nurses to assess, monitor, plan and evaluate programs for populations at need.
This chapter examines the various aspects of technology and its use in public health nursing. Throughout the chapter, vignettes from nurses who work with the public’s health in mind reveal how information technology is being used, or not, in the practice setting. Their stories show the advances that have been made as well as the issues related to the diffusion of new ideas into practice (Rogers, 1983). These vignettes serve as a conduit where the true experts, those individuals working with populations in a variety of settings, tell us how they integrate information technology in the care they render. The future directions of nursing information technology for public health nursing provide the reader with additional reflections on the current status and strategies to move into the future.
Role of Technology in Public Health Nursing Practice
The need for near-real-time data and the information and knowledge that can come from this requires systems and technology. These information systems will transform public health nursing practice. Public health nurses work in health departments, clinics, visiting nurse services, ambulatory care settings, and anywhere that nursing takes place in the community. All public health workers require efficient access to near-real-time information, and their work emphasizes “population-focused services” (ANA, 2007, p. 11). Technology affords these nurses and society a better way of systematically collecting data, analyzing those data, and then applying the data analysis in a way that informs practice and improves the health of the individual, family, population, and community.
Public health nurses have always collected data on their patients, like Lillian Wald at the Henry Street Nurses Settlement in New York City. These nurses collected data to assess the health of the patients and families they served in the community (Buhler-Wilkerson, 2001). In 1914, two years after the formation of the National Organization for Public Health Nursing, the Executive Secretary, Ella Phillips Crandall (1914), wrote a letter to the philanthropist John D. Rockefeller, explaining the success that the organization had accomplished by developing a “standardization of record cards” (n.p.). With the adoption of these record cards nationally, Crandall believed public health nurses could collect data in a way that would make previously “incoherent statistics” more “homogenous or at least comparable” (n.p.).
Public health nurses knew that records needed to be kept and somehow the statistical data needed to be collected in a way that made them useful and comparable. In 1950, Freeman wrote that “nursing will be carried on within the framework of a comprehensive program for public health” and this included maintaining “vital statistics, or the recording, tabulation, interpretation, and publication of the essential facts of births, deaths, and reportable diseases” (p. 20). In today’s world, information technology assists the public health nurse to systematically collect, organize, and analyze data, as well as share it with stakeholders as they have done in the past. Now technology allows the collection and analysis to occur at a faster and more comprehensive level than ever before. Furthermore, technology affords us a way to save data and
analyze large data sets that provide the needed evidence to support changes in practice. The transformative nature of technology continues now and into the future.
analyze large data sets that provide the needed evidence to support changes in practice. The transformative nature of technology continues now and into the future.
In today’s healthcare arena, public health nurses must ask how technology can be used to:
Provide care
Access information to monitor the health of the public
Identify best evidence for practice
Enhance education for the individual, family, population, and community
Improve public health nursing
Communicate to others in health care
Support research
The answers to these questions will serve to enhance the public health nurses’ practice in education, research, and the delivery of care.
Information Technology
It is important for the reader to understand the concepts and terms used in information technology as they are applied to public health practice and public health nursing. This understanding is critical as public health nurses work toward better communication, integration, and application of information technology. Vignettes throughout this section and the chapter illustrate the technology that nurses use in their practice and how it informs practice, provides solutions, and creates challenges.
Data
Data are considered the “essential element of information” containing the “measurements and facts” (Institute of Medicine {IOM}, 2003a, p. 126) that public health nurses need to make decisions in practice. According to Thede (2003), data are defined as “discrete elements that have not been interpreted” (p. 11). The ANA (2008) uses similar language explaining that “data are discrete entities that are described objectively without interpretation” (p. 3). For example, a newly diagnosed case of tuberculosis in a small town is considered data and is reported to the local county department of health, which then reports this case to the state department of health. This case of tuberculosis singularly is considered data and is entered into a database. Certain other diseases may also be reported to the Centers for Disease Control and Prevention (CDC) and to the World Health Organization. Once reported, these data are also entered into a database.
There are many sources of data, some of which include mortality reports, vital statistics, morbidity data, and hospital data such as falls, length of stay, wounds, injuries, and occupational illnesses. Once data are reported and located in a database, analysis may be carried out. Often, the amount of data may be so overwhelming that the message the data would ordinarily convey is overlooked. It is only when the data are reported and placed into a database that patterns emerge to inform the practitioner as to what the best practice interventions may be.
Databases
Databases are systems or structures that allow for data to be stored in an organized way and that support access and retrieval (Hebda, Czar, & Mascara, 2005). Databases are collections of related records stored in a computer that permit a person or program to query in order to extract needed information (McGonigle and Mastrian, 2012). For example, in a database that maintains surveillance data for use by public health nurses, available data may represent patient chief complaints from an emergency visit, ambulance logs, prescriptions filled, or reportable laboratory results. The ANA (2008) explains that data become information after they are “interpreted, organized, or structured” (p. 3). The various
database systems help to organize and depict the data so they can become information and eventually knowledge. The data may be accessed and shared, but the end result may be different for each user depending on who retrieves the information and how he or she interprets it. Public health nurses who note an increase in mumps, a nationally reportable disease, may see the need to develop a health education program for young families if an outbreak were to occur in their community. Immunization programs may be another intervention to consider, and yet who interprets the data, such as a private practitioner or an outpatient clinic, may direct the kind of immunization program developed. It is therefore important that public health nurses know the different types of databases available to them, how to find databases, and how to use the statistics and other vital information for their practice at the local, state, and national level. Box 6-1
provides some examples of the types of databases that are available for the public health nurse.
database systems help to organize and depict the data so they can become information and eventually knowledge. The data may be accessed and shared, but the end result may be different for each user depending on who retrieves the information and how he or she interprets it. Public health nurses who note an increase in mumps, a nationally reportable disease, may see the need to develop a health education program for young families if an outbreak were to occur in their community. Immunization programs may be another intervention to consider, and yet who interprets the data, such as a private practitioner or an outpatient clinic, may direct the kind of immunization program developed. It is therefore important that public health nurses know the different types of databases available to them, how to find databases, and how to use the statistics and other vital information for their practice at the local, state, and national level. Box 6-1
provides some examples of the types of databases that are available for the public health nurse.
Box 6-1 EXAMPLES OF DATABASES
Federal Government and Health Statistics Agencies
These are federal agencies that gather, analyze, and report statistical data:
Agency for Healthcare Research and Quality (AHRQ): http://www.ahrq.gov AHRQ is the lead scientific research federal agency charged with supporting research to improve quality of health care, reduce cost, improve patient safety, decrease medical errors, and broaden access to services.
Centers for Disease Control and Prevention (CDC)
Behavioral Risk Factor Surveillance System (BRFSS): http://www.cdc.gov/brfss/BRFSS tracks health risks of adults in the United States.
National Notifiable Disease Surveillance System (NNDSS): http://www.cdc.gov/epo/dphsi/nndsshis.htm State health departments report notifiable infectious diseases to the CDC.
National Vital Statistics System: http://www.cdc.gov/nchs/nvss.htm Information from states on vital events such as births, deaths, marriages, divorces, and fetal deaths
State and Local Data Sources
Many states have their own systems for reporting data; the following are some examples: Arizona Public Health Services: http://www.hs.state.az.us/plan/index.htm California Department of Health Services: http://www.dhs.ca.gov/
International Data
United Nations Statistics Division: http://unstats.un.org/unsd/World Health Organization-Statistical Information Systems (WHOSIS): http://www3.who.int/whois/menu.cfm
Hospital and Healthcare Records
National Hospital Discharge and Ambulatory Surgery Data: http://cdc.gov/nchs/about/major/hdasd/listpubs.htm
Mortality and Morbidity Data
Mortality Data from the National Vital Statistics System: http://www.cdc.gov/nchs/about/major/dvs/mortdata.htm
Public Health Preparedness
Bioterrorism and Emerging Infections Site: http://www.bioterrorism-uab.ahrq.gov/
Source: Adapted from National Network of Libraries of Medicine and National Library of Medicine, 2005.
CREATING A DATABASE
Public health nurses need to be comfortable enough with information technology to develop appropriate databases, such as what can be developed with products like Microsoft Access, for their nursing practice when needed. In the vignette #1, the nurse recognizes a need to collect and organize data to better assess and serve the population of interest, and she sees an opportunity to use technology from a nursing informatics perspective. Marisa Cortese-Peske, a nurse researcher, noted that the Hispanic population in the community was being overlooked in a clinical trial. Based on a concern for culturally competent and congruent care, Cortese-Peske collected data on the population of interest and initiated a database to understand patterns and trends within this population.
CASE STUDY (1)
VIGNETTE FROM A NURSE RESEARCHER
Marisa A. Cortese-Peske RN, MS, PNP
I serve as the director of the cancer clinical trials office at a metropolitan teaching hospital in New York City. Our office offers a variety of clinical trials in both solid tumor and hematological malignancies. In the past, most clinical trials were chosen by an investigator’s disease interest. Many times the investigator would not look into the population of clients that were seen or the eligibility criteria needed to enroll a patient into a study. Most clients enrolled into a clinical trial were from white, middle class backgrounds. In the past year, however, there has been a dramatic movement to enroll more clients from different cultures. This may be due in part to the fact that this hospital is applying for a National Cancer Institute designation that requires more clinical trials on populations with health disparities.
During my practice at this hospital, I have noticed many barriers in conducting clinical research properly to represent all client populations. The first barrier is actually finding clients who are eligible to participate in a clinical trial. Many of the lower socioeconomic clients are seen in a separate Medicaid clinic, so most investigators do not see the clients in this clinic because the clients are followed by the fellows. Even though the fellows do have intentions of enrolling these clients in the clinical trial, there seems to be a disconnect. I have met with clients in the clinic, and it is difficult to convince them to enroll in a clinical trial when I am not the primary provider for their care. Another problem is the language barrier. Not only am I not fluent in Spanish, but many of the investigators are not fluent in Spanish either. This creates a problem to properly explain the risks and benefits of a clinical trial. In addition, the informed consent forms are available only in English. Based on this failure to properly communicate, I believe that clients have a sense of distrust and decline to participate in a clinical trial.
At this hospital I have begun my own health initiative in expanding the number of Hispanic clients currently enrolled in clinical trials. My first step was to use the technology and create a client database to capture all cancer clients that are seen at this hospital, including a diagnosis, age, ethnicity, and prior treatments. This database went into use in January 2008, and it has already helped to identify groups of clients by disease or ethnicity.
With this database it was identified that many clients at this hospital are diagnosed with HIVrelated lymphoma. In the past, however, it was never recognized exactly how many of these clients are seen at this hospital with this diagnosis.
I also realized there are numerous clients diagnosed with hepatocellular carcinoma due to hepatitis C. However, we do not have a clinical investigator at this hospital who specializes in this disease. I have expressed my concern with the director of the cancer institute, and we are currently conducting a search for a hepatocellular carcinoma specialist.
After a complete analysis of my client database, I realized that only 13% of the clients enrolled in an oncology clinical trial in 2007 were Hispanic. Hispanics account, however, for 49% of the population in the catchment area of this hospital. Whereas this disparity seems shocking, I previously recognized that many Hispanic clients who I have tried to enroll did not feel comfortable signing up for a study when they did not understand the risks and benefits of participation. I discussed this issue with the director of the cancer institute. I explained that one reason why Hispanic clients were refusing participation in a clinical trial was because they could not understand the informed consent form because it is available only in English. After months of debate I finally received the funding to translate all informed consents into Spanish. So far I have currently translated three consent forms. As a direct result, accrual numbers in the Hispanic population have increased.
With an increase in the number of Hispanic clients enrolling in clinical trials, I believe it will help to understand the physiological and/or genetic factors that cause the higher incidence of certain cancers in the Hispanic population. This information hopefully will lead to finding better treatments and preventive medicine for this population. The development of a database enabled our hospital to be more successful in this attempt.
USING DATABASES FOR TRACKING
The process of monitoring or tracking data is critical for public health nurses who want to be able to see trends and note the implication of these trends. Public health nurses may have to track data from disparate systems in order to determine trends, such as a public health nurse having to join data found in birth certificate registries with census data in a county or smaller community. The tracking of data provides important evidence for the public health nurse to support decision making and effective planning. For example, public health nurses track Lyme disease and may note an increase in a particular county. The data initially alert the public health nurse to ask critical questions. Once the proper assessment is conducted to answer these questions and the cause of the increase in the diagnoses of Lyme disease made, appropriate interventions are planned and implemented, followed by evaluation.
The public health nurse continues to track and monitor the Lyme disease in the county to determine if their planned intervention was effective.
The public health nurse continues to track and monitor the Lyme disease in the county to determine if their planned intervention was effective.
Vignette #2 describes one nurse’s experience in a home care setting that uses technology to track clients’ healthcare information. In addition, the vignette shows how data tracking can be used in billing, communication, and education.
Data Mining
Another important application of technology and nursing informatics for practice is data mining. In 1849, the gold rush in California brought people from all over the world to small towns in northern California, like Grass Valley. The gold mine established in Grass Valley is open to visitors today. Tourists can see how the various veins of gold were identified and then extracted from the earth to create wealth and improve lives. Likewise, the rich veins of data stored in databases can be extracted to show relationships and patterns to help us develop new information and knowledge. The data collected through surveillance processes can be “mined,” just as the veins of gold were mined, for any number of purposes to enhance and enrich lives in the public sphere. Data mining looks for patterns and relationships from large aggregate data sources. Data, however, have to be considered “clean” enough to be mined. Gold, when it was extracted, went through a chemical process to obtain the pure gold. The process used to clean data in preparation for effective data mining consists of “scrubbing” the data for errors that have the potential to skew any relationships or patterns. Cleansing the data, as it is called, means looking at the data for inconsistencies such as typographical errors, misspelled words, and multiple names for similar terms (e.g., “SOB” could mean “short of breath” or some other term). Abbreviations vary from institution to institution, and this can skew the data, making them difficult to use. Software packages exist to help scrub the data and remove the inconsistencies (Hebda et al., 2005).
CASE STUDY (2)
VIGNETTE OF A HOME CARE NURSE
Irene S. Rempel BS, RN, LMSW
Home care is using computers and informatics more and more. Our intake department is able to obtain patient referral via direct telephone referrals, faxes, and two computerized systems, “Eason” and “E-discharge.” Both systems are expensive but frequently used as a referral source in home care.
Patient referrals are initiated at local hospitals. Patients in need of home care are identified on either system, including their admitting diagnosis, chief complaint, demographics, insurance, medications, diagnosis, any type of procedure the patient might have had while in the hospital, physician’s name, license number, National Provider Information number, and a physician’s order for home care. Those orders differ from patient to patient. Some may require specific wound care. Others need diabetic teaching and intervention.
Home care companies interested in servicing a particular client make a check mark next to the patient’s name and wait for confirmation from the social worker staff. Meanwhile, social workers review all companies interested in taking care of a particular patient and then make their decision as to which company they believe would take the best care of the patient. Once the decision is made, the social worker confirms electronically and provides a patient discharge date for the particular healthcare agency that has been authorized to provide care.
Once the company is approved to provide specific patient care, a registered nurse is sent out to assess the patient, his or her environment, and provide care authorized by the primary medical doctor. When making the initial assessment, the nurse always has his or her laptop provided by the agency. The company I work for uses a specific system. It is a detailed software application that covers all aspects of certified home health agency services. It generates patient information, plan of care, doctors’ orders, and specific instructions for each discipline professionally involved in patient care. Our computer system provides medical and billing codes for different diagnoses and serves as a communication tool among providers. When our patients are prescribed more than one medication at the same time, the system identifies whether these medications are compatible or not. Frequently, our software identifies adverse effects and provides educational information for our patients regarding food and drug interactions as well.
Once the nurse assesses the patient in his or her own home, information is logged into our software that is specific to initial assessment, revisit forms, and discharge. If the nurse finds the information originally transmitted from the hospital differs in any way from his or her assessment, the doctor is contacted and a change of order is completed on a separate form and transmitted to the doctor and the agency for approval. Every revisit made by the nurse is recorded and transmitted to the doctor and the agency. Our system is able to generate a patient’s plan of care, addendum to plan of care, and change of care. Those forms are required by the department of health and patients’ insurance providers for review of medical necessity for home care, services provided, and payment to the home care agency.
Computers assist communications among all team members involved in patient care. If my patient is receiving the services of a registered nurse, physical therapist, occupational therapist, social worker, dietitian, and home health aide, the patient’s progress can be analyzed and interdisciplinary conferences made without members of the team physically being in the office. Computer access has made patient information, treatment, and follow-up considerably easier than in the past. Members are communicating with each other and the doctor without leaving their offices.
McGonigle and Mastrian (2009) state that data mining “helps to identify patterns in aggregate data, gain insights, and ultimately discover and generate knowledge applicable to nursing science” (p. 148). Thede (2003) explains data mining as “the automated processes that permit the conversion of data to information and knowledge by finding hidden relationships within data” (p. 277). The use of data mining is a key concept in nursing informatics that has relevance to public health nursing. The challenge for nursing is to continue to refine and develop
a standardized language that will enable data to be coded in like formats. The data then may be later mined for patterns and relationships.
a standardized language that will enable data to be coded in like formats. The data then may be later mined for patterns and relationships.
Information, Knowledge, and Wisdom
The practice of public health nursing can be viewed from the nursing informatics perspective of data, information, knowledge, and wisdom (ANA, 2008). Three areas of information science that the IOM (2003a) identifies include “data, information, and knowledge” (p. 126). Data become information as they are organized and “placed in context” in information systems (IOM, 2003a, p. 126). The IOM (2003a) explains that information and information systems are essential tools that public health agencies need to monitor a population’s health status and identify health hazards and risks. The information gained from these systems helps the public health nurse provide evidenced-based care to the individual, family, population, or community they serve.